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PF and symptoms

Lung Health | Last Active: Jan 12 8:10pm | Replies (11)

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@amyy70

I have NSIP and was diagnosed at Mayo in June 2023. I am taking 10 mg of Prednisone and 2000 mg of Cellcept daily. I too am pretty tired by 2-3 pm. I am 70 years old and have been active with work and moderate exercise for years. I understand that some of the tiredness comes from medication. Some days my back hurts so much it’s hard for me to stand for longer than 5-10 minutes. Also, the weather affects lots of people with PF. Especially sudden changes. I walk in my house daily as my allergies can be a problem outside. Also do breathing exercises and light weights most days. Haven’t tried pulmonary rehab yet due to my meds causing immune suppression and don’t want to get sick. I hope 5his helps. Blessings 🙏

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Replies to "I have NSIP and was diagnosed at Mayo in June 2023. I am taking 10 mg..."

What kind of breathing exercises are you doing? I believe my fibrosis is caused mainly from my autoimmune disease. Schleroderma and RA along with Sjögren's. I haven't started Ofev yet. I'm hoping if or when I start taking it I won't have too many problems with it.
Thank you for your response.
Blessings to you as well🙏🏼