Those Awful Dental Visits

Posted by zscline @zscline, Jan 10 3:41pm

One of my last major issues at this time is dealing with dental visits. I would very much appreciate input on how others deal with this. I'm probably not the only one with BE who feels the stress as soon as they lean that chair back to a flat-out reclining position. For me, it seems that no matter how I attempt to prepare myself, the need to cough arises almost immediately! I find is so very stressful that I've been tempted to cancel appointments, but know that that's not the solution. Comments? Suggestions? Thank you!

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@zscline

Very helpful input. Thank you so much. It definitely is the lack of control and total vulnerability that is so unnerving for me. I've had a lot of dental work over my lifetime due to one accident and now, because of crowns needing to be replaced. It never used to bother me much, but the laying back now automatically causes the cough response and sometimes need to expel the junk. Then, too, the new device my dentist now uses that forces my mouth to stay wide open causes major anxiety. I fear that I won't be able to swallow or what if I have to cough. I think I really do need to ask about some sort of calming medication. Hopefully, my insurance will help to cover the cost. Thanks again for your input!

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I am back again with two questions for you, as a former hygienist:

Do you think it's out of line to ask that the chair not be tipped fully back? (I know it makes the dental staff's work a little harder, but...)

Do you think it would be out of line to ask that the dentist not use that tooth brace (whatever it's called) that gets wedged into the mouth, holds it open and covers the tongue?

I realize it is up to the individual dentist to decide what they are willing to do, but your opinion regarding even asking about these things would be appreciated. Thanks again!

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@zscline

Sure hope that my post hasn't scared you. I just seem to have a lot of dental work. I always have, even with trying to take good care of my teeth.

I simply copied out a very short summary of what BE involves. I think I copied the Mayo Clinic info. or maybe just Googled it.

Good luck with your appointment. I think that the calmer you are able to stay, the better. Just try to relax, but do let your dentist know what you are dealing with.

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Thanks much.

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I asked my dental hygienist to not lay me back. She immediately said " I can put you back to your comfort zone and stop there. I don't mind standing at all"
I'm sure your hygienist would do the same.

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This is a very good discussion. I have had extensive dental work done for years during my teaching career. I have had MAC, Aspergillosis fumagatos, RSV, the flu- you name it - my lungs have had plenty of abuse. My dentist has always been wonderful about not tipping the chair back too far for anyone with lung issues. My husband has sarcoid, working with a partially collapsed lung, and a big belly so lying flat is definitely a problem. I think being tipped back has become a problem for many patients and any dentist worth his salt should understand and “modify and adjust” as we used to say in teaching. People in medical and teaching professions need to know their patients/clients. I will add that another issue of lying flat for long periods of time that has come to my attention is having an MRI. I couldn’t last in that position for thirty minutes a few years back, and the MRI was stopped. It was not a pretty scenario, and I wrote a letter to the hospital. Since then I have had other MRI’s that have gone better with the educating of whomever is doing the procedure. I know I ruffled some feathers at the time which is so not like me, but gee whiz when you’re literally choking to death on your phlegm and nobody’s paying attention, that’s a problem!! If a dentist won’t modify and adjust for the patient then it is time to find a new dentist! We all need to learn to advocate for ourselves. Sometimes that’s hard to do. Advocating for ourselves doesn’t have to be mean or nasty. Speaking honestly and calmly about our needs should be enough. Irene5

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What about the water you’re being exposed to?

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@reneemc

What about the water you’re being exposed to?

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What are you thinking in regards to the water?

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@zscline - I have established myself with a dentist and hygienist who now knows my protocol. I have CF as well as bronchiectasis. I cannot lay flat back or I will cough up mucus so they put me back as far as my comfort level will allow. If I start coughing, they bring me up some. I have the hygienist clean my teeth the old way, manually, so no water except to rinse when needed and that gets all sucked out. They know I will take extra time for manual cleaning. I stay with the same hygienist every time so I don't have to explain everything each time. So far, so good. It's important to ask for what you need/want. @lindam272

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@zscline

What are you thinking in regards to the water?

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The NTM

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Six month cleaning today. All went well. I made sure to do extra huff coughing before visit. Scaling is done "old fashioned way" and not with water spray. I try to make their job as easy as possible by taking as good care of my teeth as possible in-between visits. I used their rinse cup mixed with water and mouth wash. No swallowing so I believe safe from possible germ/bacteria. Hygienist told me that most dentist offices have weighted blankets to calm jittery nerves. I thought that was interesting!

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@scoop

Six month cleaning today. All went well. I made sure to do extra huff coughing before visit. Scaling is done "old fashioned way" and not with water spray. I try to make their job as easy as possible by taking as good care of my teeth as possible in-between visits. I used their rinse cup mixed with water and mouth wash. No swallowing so I believe safe from possible germ/bacteria. Hygienist told me that most dentist offices have weighted blankets to calm jittery nerves. I thought that was interesting!

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That’s really funny . Jittery nerves! Yes probably the weighted blankets are used for children with autism or sensory issues which is a great idea. For people like us it’s more about not wanting to be infected with bacteria from their water supply and being proactive.

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