asked the question about VEXAS, the medication is very expensive, “Jakafi”, how can I get assistance with the cost of this medication. I am 73 years old on NYS Medicare, with Excellus supplemental insurance. Thanks Joe
asked the question about VEXAS, the medication is very expensive, “Jakafi”, how can I get assistance with the cost of this medication. I am 73 years old on NYS Medicare, with Excellus supplemental insurance. Thanks Joe
Joe @mayo2290, Here's some information I found on financial assistance for the drug.
"How to afford Jakafi?
The IncyteCARES for Jakafi Patient Assistance Program (PAP) helps eligible patients who do not have prescription drug insurance or have trouble affording their out-of-pocket costs for Jakafi. No purchase contingencies or other obligations apply."
--- Financial Assistance and Support Options for Jakafi ® (ruxolitinib): https://www.incytecares.com/oncology-hematology/jakafi/financial-assistance.aspx
asked the question about VEXAS, the medication is very expensive, “Jakafi”, how can I get assistance with the cost of this medication. I am 73 years old on NYS Medicare, with Excellus supplemental insurance. Thanks Joe
Hi @mayo2290, Joe, I hope you saw the helpful information that @johnbishop provided about the financial assistance program to help with the cost of Jakafi. I suggest talking with a nurse or social worker to help with getting funding through the program.
— Financial Assistance and Support Options for Jakafi ® (ruxolitinib): https://www.incytecares.com/oncology-hematology/jakafi/financial-assistance.aspx
My husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in November it was discovered by genetic testing that he has VEXUS. It is a syndrome that was identified in 2022. He has rashes and superficial vein clots along with his low blood counts due to the MDS. They have always called him an enigma but this diagnosis explains his unusual symptoms. Anyone else know of this newly diagnosed syndrome?
My husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in November it was discovered by genetic testing that he has VEXUS. It is a syndrome that was identified in 2022. He has rashes and superficial vein clots along with his low blood counts due to the MDS. They have always called him an enigma but this diagnosis explains his unusual symptoms. Anyone else know of this newly diagnosed syndrome?
My 77 yr. Old husband has been diagnosed with unclassified MDS for 5 yrs. In October his bone marrow biopsy showed he has VEXAS. A genetic mutation identified in 2020 by NIH. It is an autoimmune disorder that causes multiple symptoms including MDS. He is with Emory Winship in Atlanta. Would like to connect with any others that have this newly named disease.
My 77 yr. Old husband has been diagnosed with unclassified MDS for 5 yrs. In October his bone marrow biopsy showed he has VEXAS. A genetic mutation identified in 2020 by NIH. It is an autoimmune disorder that causes multiple symptoms including MDS. He is with Emory Winship in Atlanta. Would like to connect with any others that have this newly named disease.
Hi Anne, I moved your posts about connecting with others living with VEXAS to this existing discussion in the Autoimmune Diseases support group. Click the link to read previous helpful posts and to connect with members like @mayo2290 @rjmatavish @caithanrah and @bhadfield who also have this newer discovered autoimmune disorder.
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Yes, my friend’s son has it and he recently received a bone marrow transplant as part of his treatment plan.
No, unfortunately I am not a veteran.
asked the question about VEXAS, the medication is very expensive, “Jakafi”, how can I get assistance with the cost of this medication. I am 73 years old on NYS Medicare, with Excellus supplemental insurance. Thanks Joe
Joe @mayo2290, Here's some information I found on financial assistance for the drug.
"How to afford Jakafi?
The IncyteCARES for Jakafi Patient Assistance Program (PAP) helps eligible patients who do not have prescription drug insurance or have trouble affording their out-of-pocket costs for Jakafi. No purchase contingencies or other obligations apply."
--- Financial Assistance and Support Options for Jakafi ® (ruxolitinib):
https://www.incytecares.com/oncology-hematology/jakafi/financial-assistance.aspx
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2 Reactions@caithanrah mentioned that her dad is seen by Dr. Mangaonkar at Mayo Clinic https://www.mayoclinic.org/biographies/mangaonkar-abhishek-a-m-b-b-s/bio-20489280
@bhadfield, is your rheumatologist at Mayo Clinic or local and working with doctors at Mayo?
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2 ReactionsHi @mayo2290, Joe, I hope you saw the helpful information that @johnbishop provided about the financial assistance program to help with the cost of Jakafi. I suggest talking with a nurse or social worker to help with getting funding through the program.
— Financial Assistance and Support Options for Jakafi ® (ruxolitinib):
https://www.incytecares.com/oncology-hematology/jakafi/financial-assistance.aspx
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Hug
3 ReactionsSearch Vexas fundation and Dr Marcela Ferrada, i hope they can help you!
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1 ReactionMy husband was diagnosed with MDS 5 yrs ago. After his last bone marrow biopsy in November it was discovered by genetic testing that he has VEXUS. It is a syndrome that was identified in 2022. He has rashes and superficial vein clots along with his low blood counts due to the MDS. They have always called him an enigma but this diagnosis explains his unusual symptoms. Anyone else know of this newly diagnosed syndrome?
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Like -
Helpful -
Hug
1 ReactionMy 77 yr. Old husband has been diagnosed with unclassified MDS for 5 yrs. In October his bone marrow biopsy showed he has VEXAS. A genetic mutation identified in 2020 by NIH. It is an autoimmune disorder that causes multiple symptoms including MDS. He is with Emory Winship in Atlanta. Would like to connect with any others that have this newly named disease.
Hi Anne, I moved your posts about connecting with others living with VEXAS to this existing discussion in the Autoimmune Diseases support group. Click the link to read previous helpful posts and to connect with members like @mayo2290 @rjmatavish @caithanrah and @bhadfield who also have this newer discovered autoimmune disorder.
- Has anyone heard of VEXAS syndrome? https://connect.mayoclinic.org/discussion/has-anyone-heard-of-vexas/
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