← Return to Essential Thrombocythemia (ET): foods, diet, nutrition?

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@janemc

Many of us have gotten the ET diagnosis with almost no explanation or guidance.

It IS very scary! And it takes some work to get a good understanding of our very rare condition.

But you are not alone.

Please understand that our ET is a chronic cancer, not an acute cancer such as lung cancer. There's no cure (yet!) but there's helpful treatment.

Your low-dose aspirin is already protecting your cardiovascular systems.

Another helpful option to explore with your hematologist is hydroxyurea (HU) capsules to lower your platelet levels.

May your biopsy go well. You've found friends here, and we're all rooting for you.

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Replies to "Many of us have gotten the ET diagnosis with almost no explanation or guidance. It IS..."

Had my first dose of HU 500mg today. Doctor said my bone marrow biopsy showed no scarring, everything she suspected normal except platelets were 676. She says she doesn’t expect any problems & I should respond well to HU. Wants weekly monitoring for a month to check & then maybe adjust medication & see me every 3 months. Does this sound normal?