Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
It sounds like your marriage was difficult on you and the relationships within the family but it's wondering that you are close to your grandchildren. I'm sure they love you very much.
Thanks Erika, we all really do love each other. Take care, Sunny
@sunnyflower
Sunny, I hear you about being exhausted talking about this. Life is all about relationships with other people. And as much as we try to give love and accept love it's really all a crapshoot as to how it all turns out. The hurts we sometimes feel do one thing and that is make us think. But we all come in to the world alone and in the end we will all leave alone. So, as you have mentioned before, it ends up that the relationship with God is all we have ultimately. The hurts that come in life we just suck up and try to learn from. They make us question life, and questioning is good. And I know I'm not telling you anything Sunny that you don't know already. Best, Hank
Hi all, I see this discussion has turned to family dynamics and specifically missing grandchildren during the time of COVID. I'd like to direct you to this related discussion that may interest you:
- Grandmas and grandpas...opportunity knocks! Ideas during COVID https://connect.mayoclinic.org/discussion/hey-there-grandmas-and-grandpas-opportunity-knocks/
I also think a new discussion about family dynamics and navigating them as we age would be a great new discussion in the Aging Well group: https://connect.mayoclinic.org/group/aging-well/
Let's return this conversation back to the topic of managing chronic pain.
@sunnyflower @jesfactsmon I do think that we make time for what is really precious to us. We find a way, as this preciousness is so important. Yes, we all are so busy, but we find a way with what is precious. We all have our priorities and as I age, I tend to judge actions more than words. Yes, we are born and die alone. But while we are here, we have those very precious people, trying to do their very best. Perfect? No, but we don't need that. But we do need to see trying mighty hard!!!! And we have to try mighty hard with the folks we love.... Lori Renee
I’m 65 and have had chronic chronic pain since getting injured in the Navy when I was 19. To give you an idea of how much it involves, my service connected disability total is 180% because it has evolved into Sever Systemic Disease. I mistakenly didn’t question being on 480 tp 500 mg of morphine a day for many years. I was careful not to take it to get high but I wasn’t able to just grin and bear it because my heart is part of that disability, 100% for that and 80% for skeletal issues. I went through a 10 day detox in the hospital in February of last year after a colonoscopy and endoscopy didn’t show a cause for the pain so I was diagnosed with Narcotic Bowel Syndrome and a detox was supposed to be the only treatment. The constant abdominal began after emergency surgery to remove my gallbladder and the endless complications afterwards. Now that pain controls my life. There were times when the ortho pain was so bad that I could only walk a few steps using a walker because if I pushed it my defibrillator would knock me on my butt because of the SVT that it caused. But even with all of that going on I was able to volunteer at the VA for years and could take care of myself. The chronic GI pain doesn’t allow me to think clear enough to do much of anything. There’s a reason for the term “Its Like. Getting Hit In The Gut”, having pain there doesn’t allow you to concentrate on anything else but how to make it stop. It fills you with anger and limits your ability to cope with anything that is going on around you, including the other chronic pain. My GI Dr at UTSW here in Dallas is referring me to the Mayo Clinic after not finding anything that would explain the pain after an EUS and ERCP two weeks ago. I’m sure that it’s only the GI patients that truly understands the difference in having really bad GI pain and what it does to their lives. I’d sell my soul to make it stop so I’m hoping that the Mayo Clinic’s Dr’s won’t make me have to.
Hello @dvdhoover. I have to commend you on your continued search for answers despite the amount of pain you are in on a daily basis. When is your appointment and what Mayo Clinic location are you visiting?
Thx Colleen. Didn't even realize it! So sorry!
@dvdhoover
Off 500mg of morphine in 10 days!!!! That had to have been 10 days in hell! And my doctor is refusing to let me go from 45mg a day to 60.
I'm certainly hoping that the doctors at Mayo will be able to help you. There has to be a source of the pain you live with, and if they can find the source, they will be more likely to get you the treatment you need. I wish you well.
Jim
I live in the UK. I had a Laparoscopic Sigmoid Colectomy three months ago. I think that I might have Acute Cutaneous Nerve Entrapment. I had been taking Gabapentin for over two weeks and Paracetamol. It is affecting the quality of my life, has anyone else had experience of this?