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Im 64 and my blood platelets have been in the low 530-550 range for yr

Blood Cancers & Disorders | Last Active: Mar 26 5:08pm | Replies (14)
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@mrkevinl

Thank you Patty for your reply. I am trying to stay positive and keep my fingers out of the search bar.

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Replies to "Thank you Patty for your reply. I am trying to stay positive and keep my fingers..."
Patty, Volunteer Mentor | @pmm | Jan 11 1:09pm

I feel your pain. I have a hard time with that too.

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nyjean | @nyjean | Mar 24 6:24pm

Hi Kevin --
Recently diagnosed with ET with numbers close to yours. Have you had genetic testing? It turns out I have a genetic mutation JAK2, which is involved in about half of ET cases (according to what I read here). Started taking HU daily with no side effects & my platelet count has dropped to 340. Seeing my doctor this week if it's looking good medication might be reduced to fewer days per week.

The diagnosis was scary but I'm feeling much more positive now. Just read a post here by a guy who was diagnosed 30 years ago!

All best.

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