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Extreme fatigue and exhaustion

Post-COVID Recovery & COVID-19 | Last Active: Feb 10 8:26am | Replies (36)

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@smdawson540

Hello I have had all of the above, still do. It has been for over 3 years now. Johns Hopkins has an excellent Long COVID clinic. You need to be referred. I strongly encourage you to see about this. The form is on their website and your daughter's Primary Care Physician can refer her. I am currently a patient with them. I am so grateful. It has had a huge impact on my mental well being. My body is another story, but I understand why and what is happening and have coping skills, I work with a specialized Physical Therapist, and I have medication. I hate taking medicine but it is necessary and my quality of life plummets to fully bedridden without it. I would encourage your daughter to pace herself with exercise. I have been told to limit activity to 20 minutes an hour, sometimes I can do 20 minutes and sometimes I can't. Long COVID is attacking my autonomic nervous system, I have neuropathy with CRPS in my foot, leg, back and neck and head, gastroparesis, POTS, etc. I am learning to live with this and find the good in life in this new very altered state of living. I wish you and your daughter good luck. She is lucky to have you.

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Replies to "Hello I have had all of the above, still do. It has been for over 3..."

Thank you very much for your reply and recommendation. I am glad you are feeling encouraged and it is having a positive effect on your mental well-being. That is so important and I can see the drastic change in my daughter’s mental well being feeling with this along with her brain injury and trying to get her hip surgery from her fall due to COVID. I wish you continued success and more progress with your issues. Please keep us posted. Blessings.