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Does anyone take Tegritol for burning mouth syndrome

Chronic Pain | Last Active: Feb 23 7:31pm | Replies (5)
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@julbpat

I take Tegretol for small fiber polyneuropathy. It diminishes the burning pain and has few side effects for me. I have intermittent burning mouth pain, with small blisters, as my neuropathy takes turn affecting different parts of my body! I took it for 20 years for seizures. When I resumed it 1.5 years ago, I had weight gain. That worried me at first, but honestly, as my neuropathy has progressed, looking fat has become one of the least of my problems.
I’ll try to find my initial post about my Tegretol experience.

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Replies to "I take Tegretol for small fiber polyneuropathy. It diminishes the burning pain and has few side..."
thoracic | @thoracic | Jan 14 8:46pm

I took Tegretol XR for 18 years, it did help me a lot. The only thing I have checked frequently was my sodium levels. My doctor told me that even with the low sodium levels if I took electrolytes, protein, and sodium chloride tablets, I could stay on it if I wanted to. You probably know it already, but there are many anti-seizure drugs, besides Tegretol that you could possibly try.

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