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12 days Post Heart transplant

Transplants | Last Active: Jan 31 8:55pm | Replies (26)

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@msrlallen

@danab, Congratulations on your 6th anniversary. This is very overwhelming but in the end I know it's worth it. It feels good to talk to others that have been here vs people who may not understand. Yes any transplant is a major complex surgery. And I'm working on getting my strength back. You are so right about food and beverage. Everything tastes so awful to me but I do have an appetite it just doesn't taste good. I just want to know also about how long does it take to start feeling a little better and gaining strength. I do get exhausted really fast

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Replies to "@danab, Congratulations on your 6th anniversary. This is very overwhelming but in the end I know..."

I would say by about 6 weeks things were showing signs of getting more normal. For me it was when they allowed me to drive again and I think with the predasone being lower is when food started tasting better. I left the hospital about 8 days after transplant but because we lived about 70 miles away, we got a long-term hotel room with a kitchenette closer to the hospital and did that for about 3 weeks. by that time the appointments were getting less so we went home and drove in for the required appointments. so at first i lived at home on the first floor (we have a 2-story house and our bedroom was on the 2nd floor) and that lasted for about a month while I got the strength to climb stairs. so that may give you a bit of a timeline. Please know I was pretty sick and already in the hospital about a month before transplant. My old heart was giving out fast so being in bed so much my muscles were very weak. I think for those who could stay at home and do some exercising prior to transplant probably recover much faster. Everyone is different so my best advice is walk the floor as much as they let you. Its amazing how fast muscles atrophied when in bed too much.