← Return to HCM-ers: Introduce yourself or just say hi

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@karukgirl

Happy New Year and a big Welcome to Mayo Connect @erica8082!
Thank you for sharing your story with the Hypertrophic group. Your determination and perseverance and refusal to give up certainly helped you regain your life. And time too, of course!
We are all so different and no two will have the same outcomes. I was a lot like you before I had surgery. I was super active and was so depressed about what HOCM had taken from me. It was so hard to understand how this ridiculous heart disease could rob me of all I loved to do. I would laugh, but not because it was funny, at how just bending over to tie my shoes would put me into tachycardia and I'd be gasping for air.
My recovery was not as terrible as yours. I'm sorry you had to go through all that for as long as you did. But you made it back and you are here on Connect to give hope to others! So thank you again for sharing. 4 1/2 months is not that long ago. I was told it can take almost a year for the heart to completely heal from the inside...so you may be even more happy further down the road at what you can accomplish with your heart all patched up and ready to go!
You are right about getting out and walking as much as you can as soon as you can. Good advice! Are you on meds for the palpitations?

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Replies to "Happy New Year and a big Welcome to Mayo Connect @erica8082! Thank you for sharing your..."

Thanks Debra for your thoughtful and kind reply! So nice to talk to someone else who has experienced HOCM. Yes, bending over to tie shoes and tachycardia happened to me too. (Helped to squat down rather than bend over.)
As you said, my main hope by posting was to help others with what they are going through before or after surgery. I know what it felt like to feel “adrift” as it was all so unfamiliar.
It is so encouraging to think one might keep improving for a year! Wow, thanks for sharing that. 😊
I am on Bisoprolol for palpitations.
Thanks again for your response and being a volunteer mentor!