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@erica8082

Hi, I am 4 1/2 months post septal myectomy done in Vancouver BC by a surgeon trained at Mayo Clinic. I was diagnosed 2 1/2 years ago and found it traumatizing. I am very active and couldn’t absorb there was something wrong with my heart of all things. So had to stop cycling, kayaking, horseback, cut down on weights and avoid walking hills. Kept up walking, yoga and light weights until surgery to stay fit.
After surgery, there were moments I felt too weak to even move a hand. My 91 year old mother would take my arm to help me walk. I was able to do self-care and light chores most days but gaining strength and endurance was difficult and took discipline. Activities I normally enjoy were a test of determination but I felt the only way to progress was to keep doing them.
Two months after surgery I was discouraged, thinking I should be more advanced and tired of feeling like my body was somebody else’s, not working properly. My GP said I would really start to improve in the next 2 months and she was right. Starting back on weights and yoga recently was humorous, just so weak and literally shaking. But persevered and now am close to my usual routine. Today I enjoyed yoga for the first time. It wasn’t just a struggle to get to the end. Went up 6 flights of stairs cautiously but with ease.
I still have palpitations so not all I had hoped for but the stamina is amazing. Looking back I realize stamina had gradually been eroded for quite some time.
My message is that despite being fit, the surgery was more difficult than I realized to bounce back from. I felt like I had been transplanted into someone else’s body for a few months. Perseverance, time and an understanding partner were key to gradual progress in regaining strength, endurance and flexibility. It is exciting when it starts to happen.
We worked up to walking at least 10,000 steps most days. Really recommend increasing the walking as you are medically able.
To anyone who likes being active, I hope my experience will be helpful to you.

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Replies to "Hi, I am 4 1/2 months post septal myectomy done in Vancouver BC by a surgeon..."

Happy New Year and a big Welcome to Mayo Connect @erica8082!
Thank you for sharing your story with the Hypertrophic group. Your determination and perseverance and refusal to give up certainly helped you regain your life. And time too, of course!
We are all so different and no two will have the same outcomes. I was a lot like you before I had surgery. I was super active and was so depressed about what HOCM had taken from me. It was so hard to understand how this ridiculous heart disease could rob me of all I loved to do. I would laugh, but not because it was funny, at how just bending over to tie my shoes would put me into tachycardia and I'd be gasping for air.
My recovery was not as terrible as yours. I'm sorry you had to go through all that for as long as you did. But you made it back and you are here on Connect to give hope to others! So thank you again for sharing. 4 1/2 months is not that long ago. I was told it can take almost a year for the heart to completely heal from the inside...so you may be even more happy further down the road at what you can accomplish with your heart all patched up and ready to go!
You are right about getting out and walking as much as you can as soon as you can. Good advice! Are you on meds for the palpitations?