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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@mikxtr

Hello, everyone. I've been lurking on this chat group for months now. Diagnosed with MGUS this Summer but finally not too nervous to post myself.
Thanks to @pmm and @gingerw for introducing MGUS every time someone new joined. I appreciated those links ... many times.
I've been a little obsessed with the diagnosis: researching and researching and researching. I think it's time for me to just sit and wait, something I've never been good at.
I have IGG lambda with stable M-Spike but both FLCs increased since last test. So I asked for another round of testing in 6 months (dr wanted to wait 2-3 years!) and a consultation with a Hematologist.
Anyway, thanks for sharing your stories, worries, fears and pain ole anger. All of it was appreciated.
Cheers!

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Replies to "Hello, everyone. I've been lurking on this chat group for months now. Diagnosed with MGUS this..."

@mikxtr ! Welcome! So glad you chimed in. I’m also glad you are asking for more timely appointments and a referral to a hematologist.
It’s unsettling to get the diagnosis and watching and waiting is frustrating, I agree.
I look forward to hearing about your experience with your new specialist. Do let us know how it goes.
Patty