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Autoimmune illness and small fiber neuropathy

Neuropathy | Last Active: May 28 9:29am | Replies (51)

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@criscros21

In response to the original comment, I also feel like each of my doctor’s is focused on their slice of practice. Only after reviewing my old medical records today did I discover a report in which my neurologist states that that I have a mild neuropathy and he suggests a particular doctor from the Cleveland Clinic . I also have MS and Sjogren’s. But my icy cold burning pain is getting stronger lately and more widespread. It is a constant ache all day long. I wish my doctor had overtly told me to get checked out for the SFN. I don’t know if there is something else I could take for the pain. But if SFN is to blame, then perhaps there is something else that might work! Any thoughts or ideas would be greatly appreciated. I currently take Lyrica and Cymbalta for pain. Does anyone else have all-over skin ICY COLD constant burning? More recently, at night it changes to a HOT BURNING, then COLD again once the day begins! Crazy.

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Replies to "In response to the original comment, I also feel like each of my doctor’s is focused..."

@criscros21
I have idiopathic SFN and take alpha Lipoic acid (600 mg) and Acetyl l carnitine-300 mg) supplements that seem to help some of the SFN symptoms. I had severe burning, pins and needles, prickling pain that started in my feet and has traveled upwards. I still get some of this but much less and now more numbness/weakness.