This is a horrible disease. My skin burns almost everywhere and nothing is helping. Or if it helps (like diaper rash cream) it later stops helping. I’m in misery and have other conditions and triggers to manage. I’ve dealt with chronic pain and migraines my whole life and this has put me over the edge into a hell realm. It hurts to lay down, it hurts to lean back on a seat so I drive without leaning back, my mask to protect me from germs burns my face, my clothing burns and irritates my body, I can feel every seam and tag on my clothing and even cotton is irritating. This is utter hell. It’s ruined my life. I pay the price every time I exercise which I love doing but immediately upon breaking a sweat my skin tingles that tell take sign. I have yet to try the powder but I’ve spent a fortune in money I don’t have on lotions potions and creams and cilantro smoothies are not curing me yet.

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