Chronic pain and upper abdomen? Please see added messages!!!

Posted by brad830 @brad830, Dec 19, 2023

I have had severe lower chest pain and high stomach pain with some nausea and vomiting for and entire year. Also severe indigestion that is treated daily with a prescription dose of Nexium and Famatodine twice a day. Since the age of 19 I have multiple medical issues. I am now 43 year old female.. I have Wolf Parkinson White syndrome with an ablated AV Node. Two pacemaker placements with one wire revision the last being in Aug 2023. In the past 20 years I have had a C-section, hysterectomy, gallbladder appendectomy, a open surgery to the right abdomen for a repair of my urethra due to over 100 are more kidney stones in 15 years. I have been experiencing symptoms of uncontrolled pain for a year now I have seen every specialist they can think of. I have had many test to include but not only a colonoscopy and an upper stomach scope. With no answers I am very fortunate to live in the town of Augusta Ga. With one of the states large Medical colleges and research hospitals! Unfortunately the Drs are now talking about UNC but I just don’t know what to do!

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@brad830

Thank you for sharing your story with me! I really appreciate it. My goal now is to find others living with this disease to see how their bodies are reacting. The scariest part to me is that I already have one kidney. I was only born with one. I am terrified at this point. So thank you again very much.

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@brad830, sorry to hear of your most recent diagnosis. If you are comfortable sharing, has it been shared with you which type of amyloidosis you have? There are quite a few discussions dedicated to amyloidosis on Connect if you use the search function. Here are a few of those discussions:

- https://connect.mayoclinic.org/discussion/amylodosis/
- https://connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis/
- https://connect.mayoclinic.org/discussion/diagnosed-with-mgusamyloidosis/
- https://connect.mayoclinic.org/discussion/al-amyloidosis-maybe/

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