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I have smoldering Myeloma. Does anyone have this diagnosis?
Blood Cancers & Disorders | Last Active: Jun 9 9:26am | Replies (108)Comment receiving replies
Follow Mayo Multiple Myeloma for correct and current information. There is other information on the web regarding your illness, but some is not current or correct. Order an information packet about Multiple Myeloma from Mayo Cancer Center and educate yourself. For me it was like returning to college. You need to work with a Hematologist and not just a family doctor . I sincerely hope this helps you.
Replies to "Follow Mayo Multiple Myeloma for correct and current information. There is other information on the web..."
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Yes, I have been doing a lot of reading and have only worked with a hematologist. It's a little frustrating that he mostly just wants to tell me I don't have MM (and isn't that great?? No, not really, just means I have no real cause or place to begin to explain my symptoms or why my free light chains are through the roof). But he has me on follow up care to see if this progresses into MM and has also offered to have me join a clinical trial. That means I have to get labs every month instead of every two but that's okay (my local lab tech is kind of a hottie so there's that 🙂 )