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Transplant: BK Virus

Transplants | Last Active: 2 days ago | Replies (120)

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@lmcarmichael

Hi @danab, I'm finally responding with an update about the BK Virus treatment. I saw a urologist who put me on Oxybutynin, it's supposed to help with the bladder urgency. I also had a cystoscopy. That confirmed scar tissue and ulcers in my bladder from the BK. No cancer. My infectious disease team spoke with my transplant team who agreed to lower my cellcept to 250 x 2 per day. That is the lowest they'll go due to previous rejection issues. I know there's no treatment beyond this for the ulcers. I had them in my mouth before I know what I'm dealing with. I just wish there was something for the pain. And I don't want anything addictive. just tired of it all. Hope ya'll had a nice holiday.

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Replies to "Hi @danab, I'm finally responding with an update about the BK Virus treatment. I saw a..."

Pain .. I try my best to follow " Mind over body" a theme that I was exposed to when studying / following classical Yoga of the mind. ( very hard to implement but that approach has helped me some times...sometimes I felt during my grad school/working years difficult to implement... now I am retired & over the years it is more feasible now than ever before........well this is purely subjective.