← Return to Transplant anti-rejection medications. What's your advice?

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@gerryp

Good morning. I am just about 2 years post liver transplant - and have CKD stage 2. How long were you on Tacrolimus before they changed you to Everolimus? Are you treated at Mayo or some other hospital? My creatinine numbers are OK, but GFR is in the 60’s. I have been trying to get my Mayo team to reduce my tacrolimus dosage as I don’t want a kidney transplant in my future. I currently take 2mg twice a day and my blood level trough is in the 4-6 range. Thx for your help & experience as a 11+ year survivor.

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Replies to "Good morning. I am just about 2 years post liver transplant - and have CKD stage..."

Hi, @gerryp. I thought that I would pop in for a minute to admit that I have no experience to share about changing to a different antirejection medication. I have been on Tacrolimus for nearly 15 years along with Cellcept. Prednisone was eliminated by kidney dept after 5+ years. One thing that I have had the good fortune of experiencing is how closely the liver transplant team and the kidney transplant teams operate for our best outcome. I remember that I had questions (and frustrations) about my Tacrolimus and prednisone. I found out early on that what is good for one organ is not necessarily best for the other. I can also remember that each team would explain their decision based on current research along with my current lab levels.
I guess what I'm trying to say is that I encourage you to keep on asking questions. I think I saw you on one of the zoom support sessions, so I know you are in good hands at Mayo.