Finished 28 Proton Therapies

Posted by saxman911 @saxman911, Nov 12, 2023

Notice that ejaculation was very painful but after 3 weeks every thing started to flow - prostate discomfort faded again-maybe I got lucky. Getting my 1st PSA ON Dec 11th 2023
I only had 1 core with a Gleason 7 - my doctors told me prior to treatment most likely I nipped it in the bud.

Alan.

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I'm 65 and I am in excellent health. I live in Northern Wisconsin summers and winter in Scottsdale 6 mo out of the year. Been staying up North going thru my Biopsy and Pet scan... Meet with a surgeon tomorrow. I also contacted Mayo Scottsdale and may decide to go down. there for a second opinion. Mayo Rochester MN is about 5 hours from me. If I go the Mayo route I could have their care where ever I am. (that's a plus). I believe the survival rates are equal with both proton therapy and RProstectomy. I'll know more tomorrow.

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lee, haven't wanted to interrupt the flow with sam and jc.
Similar situation options:
5 fraction Proton
5 fraction SRBT with MRI guidance
28 fraction Proton
I don't think the 5 fraction Proton with MRI guidance is available now, otherwise that would be my choice.
Take a look at the 5 anyway. Avoid surgery, if you can.
Best wishes

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@saxman911

I am currently 71 years old to be 72 in April 2024. with the Gleason score 8 and above I would definitely go for proton beam therapy (with the Hydro-gel space oar) especially because of the amount of cores that you have are positive. Do not go on active surveillance you're taking a big risk. I only had one CORE positive with a Gleason score of 3+4 = 7 and my urologist said to me let's nip this in the bud. jmho- good luck

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Your posts have been very helpful and informative. We are exactly the same age. I am still in the PC screening/ diagnostic phase. May I ask where you received the proton therapy?

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@leenielsen

I'm 65 and I am in excellent health. I live in Northern Wisconsin summers and winter in Scottsdale 6 mo out of the year. Been staying up North going thru my Biopsy and Pet scan... Meet with a surgeon tomorrow. I also contacted Mayo Scottsdale and may decide to go down. there for a second opinion. Mayo Rochester MN is about 5 hours from me. If I go the Mayo route I could have their care where ever I am. (that's a plus). I believe the survival rates are equal with both proton therapy and RProstectomy. I'll know more tomorrow.

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At 72 I chose surgery at a center of excellence (Johns Hopkins), and would choose it again.
Very good health, other than PCa (G 9 & 8s).
Surgery gave me a chance for "cure", removal of the known cancerous prostate and reserved radiation therapy for any recurrence (surgery after radiation is problematic).
Note however that surgery and radiation are said to have similar survival statistics.
Excellent resource for many has been Patrick Walsh MD's book "Surviving Prostate Cancer".
Best wishes for your tx choice and success.

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@kalidad

Your posts have been very helpful and informative. We are exactly the same age. I am still in the PC screening/ diagnostic phase. May I ask where you received the proton therapy?

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delray Beach Florida

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@kalidad

Your posts have been very helpful and informative. We are exactly the same age. I am still in the PC screening/ diagnostic phase. May I ask where you received the proton therapy?

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Hi @kalidad, will you be getting proton beam therapy? When do you start?

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ABDELam 72 years old.Please find attached biopsy results, I am on waiting time and PSA every 3 months. The biopsy was done 9 months ago. Your comments and advises are highly appreciated.

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Seems like a good report to me and Active Surveillance seems reasonable. Glad to see you're getting blood tests every 3 months. Perhaps they could run a decipher test on your biopsy samples. Best of luck. I had an RP in August 22 at 60 yo. No side effects for me.

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@abdelrazek

ABDELam 72 years old.Please find attached biopsy results, I am on waiting time and PSA every 3 months. The biopsy was done 9 months ago. Your comments and advises are highly appreciated.

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Thanks for posting your biopsy results, I assume with Gleason 3+3=6 you are on Active surveillance, everything I've read says to do AS even with Gleason 3+4
My MRI showed 1 12mm lesion and PIRADS 4 and I had a 4K score of 95 ( most aggressive) so my next step in and MRI Perineal needle biopsy, I am hoping for results like yours

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@gently

lee, haven't wanted to interrupt the flow with sam and jc.
Similar situation options:
5 fraction Proton
5 fraction SRBT with MRI guidance
28 fraction Proton
I don't think the 5 fraction Proton with MRI guidance is available now, otherwise that would be my choice.
Take a look at the 5 anyway. Avoid surgery, if you can.
Best wishes

Jump to this post

New York Proton Center have 5 Fraction Proton with MRI Guidance.
Most proton centers use “volumetric” beams that deliver a fixed quantity of energy to the entire tumor. But the pencil beam scanners at the New York Proton Center deliver “intensity-modulated proton therapy,” or IMPT.

Widely considered the most advanced form of proton therapy, IMPT can target different parts of the tumor with different radiation dose levels to most precisely and effectively treat the tumor. That’s particularly valuable when treating the most complicated tumors, such as those residing in brain or spine, head and neck, lungs and chest, and abdomen.

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