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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 4 days ago | Replies (6794)Comment receiving replies
@faithwalker007
Wow, that is an amazing description of your pain Renee. I have a much clearer picture of, if not WHAT you are experiencing (I'd have to feel it to do that), but actually where it occurs and how it moves and develops in your body. I can feel your frustration and impatience at what this is doing to you and even the fact that it's happening and you are pretty much at the end of your tether over it.
A few minutes ago I was reading the account by @jerid of her case of shingles and the unbelievable and virtually indescribable intensity of pain that occurs with that illness. I think that is part of the frustration of pain sufferers, that they can not communicate to others exactly how terrible experiencing their pain actually is. It's impossible. My guess is that if EVERY person on earth (including all doctors and researchers) were forced to experience pain like she (and you) are trying to convey for at least 30 minutes each and every day, there would be a whole array of effective and safe pain treatments available to all within a remarkably short period of time. Think about it. If everyone knew the level of misery that it is possible for a human being to feel, a whole new level of motivation to find answers would magically open up.
Just a thought. Hank
Replies to "@faithwalker007 Wow, that is an amazing description of your pain Renee. I have a much clearer..."
@jesfactsmon so well said, Hank. My sister’s pain doctor (according to her) is unbelievably compassionate because his wife suffers from a very painful condition. He always folllows up on promises and even reaches out to other doctors on her behalf. That is what pain management is about.
Exactly. They say CRPS is the most painful disease known to man but when you Google it, the descriptions are belittled and washed out. Lol It makes me wonder of the medical community even know anything about it. Europe is so much further along when it comes to this disease.
Remission isn’t a possibility for me but progression? That’s something I deal with and focus hard in trying to prevent every day. Stress is a trigger and stupidity from pain doctors is one.
I’m not supposed to do their job but I have to because they know absolutely nothing about my disease state or how to treat it.
I did the last part of your post yesterday in fact. Shame on me. I was reading something political on Facebook and I was at the peak hour of my pain cycle (right before my next pain meds) and some idiot made a stupid comment and I said the same thing or something like it.
I dared him to walk an hour...a day in my shoes and maybe his perspective on life in this Nation, of this World may change.
Of course he came back with some ego-filled, hate-mongering, racist comment but what am I to expect?
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@jesfactsmon I so totally agree with you! I have been in so much pain the last week! But how do I really convey the feeling and degree.? I have no pain medication that helps. I have tramadol which does nothing, I have naproxen and Motrin which do zero, and I am on 1800mg of gabapentin daily to no avail! So I continue to suffer and try to go about my day. I teach kindergarten 3 days a week so those days I really have to suck it up. When I get in the car to drive home I literally collapse before turning on the ignition. At home I drag myself into the house. My husband feels if I can go to work for 4 hours three days a week my pain can't be that bad. But it is I just don't want to sit at home and dwell on it. I did that for 6 months during the COVID quarrintine! But no one will give me give me something that works! Heaven forbid I could have less pain while I teach. So I take bits of THC gummies which are hard to regulate my dose and being ultra sensitive to it makes me a bit dizzy sometimes. Because of my reaction I hesitate to use the gummies.If a doctor really cared they would sit and listen and show care and concern. I have yet to find someone. Needless to say I sit and cry a lot. Sorry I had to vent about this neurological pain!