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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)
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@oldladydebra1

I was just diagnosed with MGUS. I’m reading there is no treatment and many can live with it for decades however, it can also progress to blood/bone cancer. I had a bone scan today and will await the results. Did you have a bone scan? I have no symptoms. It was found during routine bloodwork. What has been your experience thus far? What is your Doctor telling you?

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Replies to "I was just diagnosed with MGUS. I’m reading there is no treatment and many can live..."
Ginger, Volunteer Mentor | @gingerw | Jan 5 7:56pm

@oldladydebra1 And here we are, in the existing conversation thread. As you read the reply from @pmm, she is absolutely correct. Your story will not be my story. And my story is not Pam's.

Being diagnosed with MGUS is something to be aware of, but not a reason to stop living. A good hematologist/oncologist will monitor your situation every 3 to six months with blood work. The biggest majority of people do not progress to the next stage of smoldering multiple myeloma or beyond. Good healthy diet habits, moderate exercise, a stress-less approach to life in general, follow any guidelines you feel comfortable with, will all steer you towards being the best you can. If you have other health issues, make sure you are also addressing those!

Let us know the results of the bone scan, okay?
Ginger

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