@kayabbott, hello. I have celiac as well. My understanding of the connection between Celiac and neuropathy is that the antibodies created in response to gluten ingestion is what causes the nerve damage. It sounds as though like me, you are compliant with the gluten free diet. Who knows?
I wish that physicians (I’m generalizing) would take the discomfort of our neuropathy seriously. Whatever the etiology, it is life-changing as it impacts comfort and level of activity. So you’d think that it would be important enough for them to get excited about.
At any rate, no physician has ever connected those dots for me. I’m going to bring up celiac induced neuropathy to my PCP or hem/onc doc and see how many dots end up on top when I roll those dice. Thanks for that suggestion!
Patty