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Hello @cazms5 and welcome to the Pancreatic Cancer support group on Mayo Connect. I can understand how frustrating it can be to live as you say, "in limbo." It sounds as if your husband has had multiple scans, of different types, as well as a biopsy with no clear-cut diagnosis.
In order to clarify a bit more, perhaps you can provide some more information, as you are comfortable doing so. For example, was this mass found because your husband was having symptoms? Is he able to eat without problems? Has he lost weight? In addition to scans and biopsies, doctors also can run blood tests to check for pancreatic functioning. Have these tests come back normal? Is his medical team part of well-known cancer center of excellence?
I would like to invite some other members of this group to comment and discuss this with you such as @markymarkfl @gardenlady1116 and @jk77. If you would like to learn more from those who have a diagnosis of pancreatic cancer, here is a link to a discussion group that might put you in touch with more members.
--Pancreatic Cancer Group, Introduce Yourself and Connect with Others
https://connect.mayoclinic.org/discussion/pancreatic-cancer-group-introduce-yourself-and-connect-with-others/?commentsorder=newest#chv4-comment-stream-header
What plans does your husband's medical team have in place for follow-up at this time?
Replies to "Hello @cazms5 and welcome to the Pancreatic Cancer support group on Mayo Connect. I can understand..."
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Thank you for your welcome and comments. My husband’s mass was found because he was having symptoms, primarily weight loss and low energy. He has never had jaundice or stomach pains. Most of his issues are digestive…belching, occasional diarrhea, no appetite. He is now taking Creon which has been helpful in controlling the diarrhea. Even though he still eats very little, he has recently managed to gain five pounds. This feels like a huge victory! He has an upcoming CAT scan and possible biopsy of the fluid in his abdomen, if it is still there as shown in a previous scan. We did get a second opinion from Roswell Park Cancer Center and may go there if we require another EUS biopsy to try to obtain a diagnosis.