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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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Donald | @donfeld | Jul 16, 2020
In reply to @rwinney "My sincere thanks @donfeld. I wish you the best. Be well, Rachel" + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

My sincere thanks @donfeld. I wish you the best.
Be well,
Rachel

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You to Rachel and be safe

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1 reply
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lioness | @lioness | Jul 16, 2020
In reply to @aggie98 "I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer..." + (show)
Profile picture for Aggie98 @aggie98

I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer walk. A couple years ago my so-called pain doctor took all pain meds away from me and all his patients due to the “Opium Crisis.” Now what? All of us are being punished because of a few druggies who want to kill themselves. Many chronic pain sufferers have killed themselves due to the pain. Any suggestions for pain relief?

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@aggie98 Welcome to our caring group I just recently started with pain in my feet ,ball of foot. I found just stretching my toes help I also have O.A.in my feet and am a big proponent of exercise light ,not heavy at our age

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1 reply
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lioness | @lioness | Jul 16, 2020
In reply to @donfeld "You caught me at a bad time. I injured my hip playing golf and in fact..." + (show)
Profile picture for Donald @donfeld

You caught me at a bad time. I injured my hip playing golf and in fact I'm on my way to see you orthopedic doctor as they think I got a tear possibly in my hip joint and so I'm in severe pain and I've got to be on opioid temporarily until they get this under control. It just seems we can't get away from it and when it gets the pain gets above 5 and so what a workout through but basically I take Tylenol and marijuana and some nice wine. The key of your pain is exercise walk keep moving and that's the real thing that helps the most especially the pic they just diagnosed with me last year with a arachnoiditis. Look it up but it's caused by surgery incurable disease. Take care and again I hope you are C gives back some hope for you . , thanks

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@rwinny Oh no with all you have I wish you the best be careful rest now hope it's not all that serious

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lioness | @lioness | Jul 16, 2020
In reply to @donfeld "Magnilife foot cream and marijuana really helps me. Marijuana doesn't kill the pain it just relaxes..." + (show)
Profile picture for Donald @donfeld

Magnilife foot cream and marijuana really helps me. Marijuana doesn't kill the pain it just relaxes you so you can retire tolerated better. It just makes you feel better and that's half the battle I think when it comes to THC. Went through PRC and mayo and it's a fine program but the problem is there is just some pains you just can't forget about especially when it keeps you up at night. I wish you all the best and we're going to hang in together somehow some way. Maybe the election will help us. I don't know God bless and stay safe

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@donfield Is Magnilife good for O.A. also My feet and hands are getting worse .But exercise does help for awhile Thanks

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Aggie98 | @aggie98 | Jul 16, 2020
In reply to @lioness "@aggie98 Welcome to our caring group I just recently started with pain in my feet ,ball..." + (show)
Profile picture for lioness @lioness

@aggie98 Welcome to our caring group I just recently started with pain in my feet ,ball of foot. I found just stretching my toes help I also have O.A.in my feet and am a big proponent of exercise light ,not heavy at our age

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Thank you. I will try that.

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Mentor
John, Volunteer Mentor | @johnbishop | Jul 16, 2020
In reply to @aggie98 "I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer..." + (show)
Profile picture for Aggie98 @aggie98

I have horrible peripheral neuropathy pain from my toes to my knees. I can no longer walk. A couple years ago my so-called pain doctor took all pain meds away from me and all his patients due to the “Opium Crisis.” Now what? All of us are being punished because of a few druggies who want to kill themselves. Many chronic pain sufferers have killed themselves due to the pain. Any suggestions for pain relief?

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Hello @aggie98, I would like to add my welcome to Connect along with @rwinney and other members. I'm glad you found this discussion. There are a few more discussion in the Neuropathy group that you may be interested in following.

Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Ideas for pain relief from Small Fiber Neuropathy (SFN): https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

@aggie98 are you on any medication now for your peripheral neuropathy?

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Aggie98 | @aggie98 | Jul 16, 2020
In reply to @donfeld "Magnilife foot cream and marijuana really helps me. Marijuana doesn't kill the pain it just relaxes..." + (show)
Profile picture for Donald @donfeld

Magnilife foot cream and marijuana really helps me. Marijuana doesn't kill the pain it just relaxes you so you can retire tolerated better. It just makes you feel better and that's half the battle I think when it comes to THC. Went through PRC and mayo and it's a fine program but the problem is there is just some pains you just can't forget about especially when it keeps you up at night. I wish you all the best and we're going to hang in together somehow some way. Maybe the election will help us. I don't know God bless and stay safe

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Thank you. I live in conservative Texas where marijuana will never be legalized or I’d be trying it in a second. Even though I’m not as young as I’d like to be, I have always been very open minded. I’ll try the cream you mentioned if I can find it.

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Aggie98 | @aggie98 | Jul 16, 2020
In reply to @rwinney "Hello @aggie98. Welcome to Connect. I think you will find support here that will be helpful..." + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

Hello @aggie98. Welcome to Connect. I think you will find support here that will be helpful to you. I have Peripheral Neuropathy too (Small Fiber Polyneuropathy) and am sorry that your pain is severe with no help. I agree with @donfeld and also use medical marijuana for comfort and sleeping. Is it legal in your state? May I ask you your age and if you are able to get to physical therapy? Have you ever tried myofascial release?
Wishing you well,
Rachel

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Hi Rachel, My name is Karen and I hate to admit that my chronological age is 70 but my brain thinks I’m 45 which is good. That means no dementia. I live in conservative Texas where we will never have marijuana, although I’d use it in a second. I’ve been to tons of Physical Therapy over the last 4 years. I was going when this Coronavirus hit so I had to quit going.
I have no core center of balance so I must use a walker or wheelchair—both of which I hate.
My legs are totally numb on the outside but i have horrible neuropathy pain on the inside. I know that sounds weird. I took handIcapped driving lessons and had my car converted so I can drive by hand. I have helped the pain at night by using a good grade essential oil like DouTerra or Young Living and mixing several drops of Francinsence or Copaiba with lotion and spreading it over my legs. In about 10 minutes the pain is gone for the night and I can sleep. I hope this part can help someone.

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2 replies
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Aggie98 | @aggie98 | Jul 16, 2020
In reply to @donfeld "You to Rachel and be safe" + (show)
Profile picture for Donald @donfeld

You to Rachel and be safe

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Thank you.

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Profile picture for Rachel, Volunteer Mentor
Mentor
Rachel, Volunteer Mentor | @rwinney | Jul 16, 2020
In reply to @aggie98 "Hi Rachel, My name is Karen and I hate to admit that my chronological age is..." + (show)
Profile picture for Aggie98 @aggie98

Hi Rachel, My name is Karen and I hate to admit that my chronological age is 70 but my brain thinks I’m 45 which is good. That means no dementia. I live in conservative Texas where we will never have marijuana, although I’d use it in a second. I’ve been to tons of Physical Therapy over the last 4 years. I was going when this Coronavirus hit so I had to quit going.
I have no core center of balance so I must use a walker or wheelchair—both of which I hate.
My legs are totally numb on the outside but i have horrible neuropathy pain on the inside. I know that sounds weird. I took handIcapped driving lessons and had my car converted so I can drive by hand. I have helped the pain at night by using a good grade essential oil like DouTerra or Young Living and mixing several drops of Francinsence or Copaiba with lotion and spreading it over my legs. In about 10 minutes the pain is gone for the night and I can sleep. I hope this part can help someone.

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Hi Karen @aggie98, It's nice to meet you. Dont hate to admit your age...you have earned that badge of honor you call 70. That's how I feel about my 50, that I recently turned. I still feel 30! My mom just turned 70 and she, like you, does not feel her age despite her disabilities (which she's had since age 28). So much of this life evolves from our spirit, soul, and desire.

It sounds like you've got a good handle on your evening regimen. I'm impressed you've found this concoction that works and no doubt others are listening to your tips. We are all here to help each other so thank you for your positive contribution already.

It's unfortunate Texas is not yet on board with Medical Marijuana. How about myofacial release therapy? Have you ever received it? It's a wonderful treatment for neuropathy to keep the fascia loose and help work muscles. @artscaping swears by it to keep her feet moving and able to drive (and she is a bit more mature than you, age wise 😊).

You mentioned 4 years of PT and Covid stopping it. Any chance your area is open yet for PT? I know Texas is struggling so it might be tough. I'm sorry.

Your description of painful legs sounds awful but, not weird. I experience the same in my arms and have in my legs as well, I understand. The crap of PN is that it hurts to use our body and our limbs but, if we don't...It will hurt worse and set us back further. Might you be able to have a therapist come to your house? Are you able to mildly stretch daily? Perhaps implement some of what you've learned in PT over the years?

I'm sorry for your struggles but, very impressed by your tenacity to learn to drive hands only. Wow, that tells me alot about your will to not give up or give in. You'll fit in quite well here on Connect! 👍🏼

Best wishes,
Rachel

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