← Return to ET, Polycythemia, Jax2: Is this a blood cancer?

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@nohrt4me

I am so sorry you have dealt with breast cancer. Many of us have had acute cancers and understand that chronic blood cancers are very different.

What you choose to believe about ET and how to treat it are up to you, of course. But those who reject the "cancer" label often confuse and make anxieties worse for newly diagnosed patients or for those whose ET becomes brittle and stops responding to chemo.

The Mayo Clinic is not the place I expected to have to wade through denials of current medical thinking, or to get unsubstantiated info on "natural" treatments rife on some other threads. I can get that from googling stuff. So I am dismayed by people here who are pushing non-mainstream views and treatment.

None of that is helpful to my trying to deal with my own symptoms and treatments and runs counter to the aims of a support group.

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Replies to "I am so sorry you have dealt with breast cancer. Many of us have had acute..."

I am truly sorry if my comment causes you distress, I have found much good information in this support group from others who've dealt with symptoms ET and side effects of my current treatment hydroxyurea (Hydrea). The view that ET is not cancer not "unsubstantiated info." It is shared by many hematologists who don't agree with the current classification. Sharing what we are hearing from our doctors is part of what I appreciate and expect from a support group.

The classification of ET is a very small point in the over all scheme of things. I hope you have healthy days, successful treatment, and peace of mind in the new year.