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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@j2c

I use to ride bikes up to August of 2022 and got COVID in early August and was flown out by a helicopter 100 miles away, because a "Dr.", said I was having a heart attack and when I got to the other hospital ER, their heart Dr., ran me through all kinds of tests with contrast and stuff and then asked me to tell him the "story!" After, I told him I thought I was going to have him rushed into Intensive Care....he was laughing sooo hard, he couldn't catch his breath...AND THEN, he said, "Have you been working with your arms?" and I said, "Yes, and he told me, I had an inflamed shoulder and sent me home!!!!! I then went hunting on horseback and rode many miles and it jarred my neck bad, and so I've been dealing with THAT issue, so with that, MGUS, neuropathy and neck issues and age related stuff. The bike needs some dusting! I am beginning to think that nobody in the medical profession from the east coast to the west coast can get together and come up with a solution. It seems I read different people's issues with MGUS and neuropathy and different Drs., have different theories or suggestions what causes all this stuff. One Dr., told me in a few years, I wouldn't be able to walk..PERIOD!! That was 2015 and I can still put one numb foot in front of the other. If I stand on hard ground or sit, it seems feet really start warming up and tingle worse and seems to go part way up ankles. I read about people on here far worse off than me, still surviving and 80+ years old, with ALLOT more issues than I got, soooo....🤔

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Replies to "I use to ride bikes up to August of 2022 and got COVID in early August..."

I had to read through your story a couple of times! Wow, you could write a book with some of your adventures…medical and otherwise! You sound pretty rough and tumble…not much holds you back, that’s for sure!

Neuropathy is a pain in the…well, anywhere you have it! It’s not uncommon to have those symptoms with any type of bone marrow/blood disorder along with age, medications, inflammation, diabetes, etc.. I’ve gone through it myself and it’s no picnic

There are quite a few conversations in the neuropathy group that you might find helpful.
Here’s just one of many:
https://connect.mayoclinic.org/discussion/neuropathy-of-the-feet/
Here is the link to the neuropathy group so that you can look at all the discussions happening. Don’t hesitate to pop into any chat!
https://connect.mayoclinic.org/group/neuropathy/
I hope you can dust off that bike when the weather gets a little nicer…well, that depends on where you are! LOL. I’m in the cold northern part of the US right now. Getting ready to head back to Florida after a holiday break up here with family.