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Memory loss causing marital problems

Breast Cancer | Last Active: Jan 7 10:38am | Replies (20)

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@triciaot

@kimkeith You said the things that are easy to forget are recent decisions. I understand and I’d like to suggest one way that will maybe help. But I wanted to mention the issue with tamoxifen. I definitely had trouble with memory of recent info when I was on 20 mg. I could recall older info and had no problem with how to do things, but my short term memory wasn’t good.

Because of constant headaches and brain fog I ended up trying a few different doses. It seemed to me to take a minimum of 7 weeks to clear the tamoxifen from my system - and I’d say I saw the most changes after 3 months, either going off or on. I did a med holiday, total 5 weeks off. I was directed to go back on the 20 mg after the holiday, in case my body would adjust better. But . . . I guess I have to be honest here . . . I couldn’t do it. I actually started taking 2.5 mg after reading DeCensi research. It was a chance, and I don’t recommend others follow my example. There is not a body of research to show that 2.5 will work - more research needs to be done. I took the 2.5 for 3 months and when the headaches and brain fog did not come back, I upped the dose to 5 mg. My survivorship provider is okay with the 5 mg. I am coming up to the 3 month mark next week on the 5 mg. So far all is okay - but I won’t be comfortable with this dose for another month or so. I do plan on taking it for the 5 recommended years.

I’m hoping that going off tamoxifen will help your memory - give it some time to fully get processed out of your body.
My comments tend to get really long, mea culpa, so I’ll post my ideas on tech supports in the next post. Maybe you won’t even need them!

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Replies to "@kimkeith You said the things that are easy to forget are recent decisions. I understand and..."

@triciot
Acabo de leer tu comentario sobre la memoria y el tamoxifeno. He tomado hace 18 años, y durante 4 años y medio tamoxifeno .(no recuerdo el gramaje.)
Dejé de tomarlo con el permiso de mi médico porque relacionaba los terribles calambres que tenía con esa medicación. No sé si era la causa pero en su momento lo relacioné. Inclusive más tarde desarrollé neuropatía periférica de origen desconocido, y he sospechado que pueda haber una relación con ese medicamento. No se puede comprobar la relación. Solo sospecha. Lo que más me afecta es en el andar, pues no manejo bien mis piernas y he perdido parte de sensibilidad de la rodilla para abajo y creo que va avanzando. Pero gracias a Dios la parte buena de esta es que no tengo la más mínima molestia o dolor. Cuando estoy sentada o acostada ignoro mi problema.
Nunca supe ni he oído de la pérdida de memoria relacionada con el tamoxifeno
Es una sospecha o hay estudios que puedan avalar esa sospecha.?
Me gustaría saber y también saber dónde puedo ampliar los conocimientos sobre el tema.
Agradezco los comentarios que has hecho aquí. Siempre son útiles
Gracias

Mercedes Carvajal