1. < Bladder Cancer

Bladder Cancer/Small cell bladder cancer

Posted by David O'Sullivan @daithio, May 4, 2017

Anyone here been diagnosed with small cell bladder cancer. I had a cystectomy in later February (at a non-Mayo hospital) and was told that all visible cancer had been removed. Today at a 2nd opinion session at the Mayo I learned that the original diagnosis missed the fact that I have small cell bladder cancer. I'm in shock that the original pathology work missed this. I will be starting chemo ASAP. I know the outlook is not good and I'm looking for some positive threads to hold onto. Thanks

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

jimmy2248 | @jimmy2248 | Jun 25, 2019

@sandielegal yes. I remember your posts. I am blessed from all your thoughts and prayers. I

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 29, 2019
In reply to @mcgonzalez36 "Thank you all for your advice. We will arrive on Monday and have her test done..." + (show)
@mcgonzalez36

Thank you all for your advice. We will arrive on Monday and have her test done on Tuesday and see her doctor on Wednesday. We’re hoping for good news.

Jump to this post

Hi @mcgonzalez36, I wanted to check in with you. How is your grandmother doing?

REPLY
carolelen | @carolelen | Jan 3 12:55pm

I was diagnosed with a tiny tumour in my bladder
I had op to remove then 6 rounds of chemo
I have my first check up on Monday
What happens if it has come back

REPLY
1 reply
perky | @perky | Jan 9 1:11pm

I’m a 14 year bladder cancer survivor. I’m no urologist, but I can share my personal thoughts in hopes it will help. Live positively with today! Absorb joy now, and find kernels of joy in every day. Today, you are cancer free! No reason to fear what you do not have or worry over something you hopefully won’t ever have again. Grateful ! Stay physically active/ move (and our muscles love to work for you ), stay hydrated, be extremely aware of UTI symptoms and other bladder cancer symptoms . Most importantly, if u have ANY bladder CANCER symptoms ( Mayo Clinic has a thorough write up in bladder cancer on their web site) get an appt with your UROLOGIST as soon as possible! Don’t delay or think “ maybe it will go away”. Your appt will allow u to give a urine specimen, and the office/lab will diagnosis if u have a UTI or not. If u do, your urologist will give u an RX TARGETED ANTIBIOTIC that works best/ TARGETED for the specific bacteria identified from YOUR LAB results plus share any other additional information. Finally, I schedule my ANNUAL cystoscopy months in advance where my urologist gets a magnified look inside my bladder plus sends my urine sample to lab. Good maintenance
annually for his/ her “ look and see” in my bladder for any changes .
Let’s hope we will never get bladder cancer again. However if either of us do, our ongoing vigilance will help us “ catch it early”.
Congrats on being bladder cancer FREE!

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 13 12:54pm
In reply to @carolelen "I was diagnosed with a tiny tumour in my bladder I had op to remove then..." + (show)
@carolelen

I was diagnosed with a tiny tumour in my bladder
I had op to remove then 6 rounds of chemo
I have my first check up on Monday
What happens if it has come back

Jump to this post

Hi @carolelen, welcome. I can understand that you were nervous going into your first check up. That's understandable.

How did it go? What is the follow-up plan from here on in?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.