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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@loribmt

Welcome to Connect,@j2c There are a number of other members in the MGUS support group who also have some numbness in their feet. I found a discussion started by @quarksunite who is joined by others sharing their experiences of what they’re going through and what may have worked for them to lessen the annoyance of this condition. I hope you find some helpful information.

Does anyone have neuropathy related to MGUS?
https://connect.mayoclinic.org/discussion/mgus-neuropathy/

I’m sorry to hear you’re not able to keep up your hiking activities like you used to enjoy. It’s hard to give that up! Do you do any biking?

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Replies to "Welcome to Connect,@j2c There are a number of other members in the MGUS support group who..."

I use to ride bikes up to August of 2022 and got COVID in early August and was flown out by a helicopter 100 miles away, because a "Dr.", said I was having a heart attack and when I got to the other hospital ER, their heart Dr., ran me through all kinds of tests with contrast and stuff and then asked me to tell him the "story!" After, I told him I thought I was going to have him rushed into Intensive Care....he was laughing sooo hard, he couldn't catch his breath...AND THEN, he said, "Have you been working with your arms?" and I said, "Yes, and he told me, I had an inflamed shoulder and sent me home!!!!! I then went hunting on horseback and rode many miles and it jarred my neck bad, and so I've been dealing with THAT issue, so with that, MGUS, neuropathy and neck issues and age related stuff. The bike needs some dusting! I am beginning to think that nobody in the medical profession from the east coast to the west coast can get together and come up with a solution. It seems I read different people's issues with MGUS and neuropathy and different Drs., have different theories or suggestions what causes all this stuff. One Dr., told me in a few years, I wouldn't be able to walk..PERIOD!! That was 2015 and I can still put one numb foot in front of the other. If I stand on hard ground or sit, it seems feet really start warming up and tingle worse and seems to go part way up ankles. I read about people on here far worse off than me, still surviving and 80+ years old, with ALLOT more issues than I got, soooo....🤔