Have not been tested but apparently am a carrier and have passed it on to all my children. The only symptoms I have had are nosebleeds when I was younger and the red dots on the palms of my hands, inner lips. My eldest (59) was just recently diagnosed with HHT, second (57) has had brain surgery twice; first was emergency brain bleed and second was preventative. Third (54) brain surgery to remove an avm, fourth (51) avm removed from lung. My grandson, 15, surgery next month to remove avm from brain. My Mother’s two sisters’ families have also been diagnosed with HHT and being treated for avms.