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I was diagnosed with Kappa light chain MGUS in 2016. M proteins showed up last year but are at baseline. Only symptom I have is some polyneuropathy, but that could be from celiac (2009) as well. My Kappa/Lamba ratios have been ramping up for years (5.9 [normal is 0.26-1.65[) but still at 1% risk of progressing. I've kept a food log since 2009 so don't eat anything that causes GI problems, a mostly FODMAP diet with lots of tumeric/black pepper (tumeric may or may not suppress the deranged plasma cells) and almost no processed foods. I'm 69 and also exercise a lot and keep my weight down. I met my new oncologist after seeing Barbie, so his resemblance to Ken may have been colored by that; he is quite perky. Humor is good medicine.
Replies to "I was diagnosed with Kappa light chain MGUS in 2016. M proteins showed up last year..."
@kayabbott, hello. I have celiac as well. My understanding of the connection between Celiac and neuropathy is that the antibodies created in response to gluten ingestion is what causes the nerve damage. It sounds as though like me, you are compliant with the gluten free diet. Who knows?
I wish that physicians (I’m generalizing) would take the discomfort of our neuropathy seriously. Whatever the etiology, it is life-changing as it impacts comfort and level of activity. So you’d think that it would be important enough for them to get excited about.
At any rate, no physician has ever connected those dots for me. I’m going to bring up celiac induced neuropathy to my PCP or hem/onc doc and see how many dots end up on top when I roll those dice. Thanks for that suggestion!
Patty
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Yes, I am past that half century mark as well, and try to stay active, but one Dr., tells me MGUS will cause neuropathy to get worse and I won't be able to walk again, and I read on here some of the people going through MGUS, it is just numbness and no pain and another person will say, there Dr. says neuropathy isn't caused by MGUS, and then some say they got it in the military and like myself, I'm not a veteran! So allot of questions remain unanswered. I absolutely find this forum extremely helpful and enlightning!!