Vaginal Atrophy

Posted by daisysocal @daisysocal, Sep 27, 2022

Seems like vaginal atrophy is a taboo topic, yet so many women are suffering with this. I had breast cancer and was on anastrozole for 7 years. I’m not sure if my Intercourse pain is due to lack of estrogen from the estrogen blocker or from menopause or both. I have opened up about this with female acquaintances and have found there are so many women who suffer from this. It’s a subject so difficult to discuss with your husband, partner, doctors, etc. Many women have told me estrogen creams don’t work, Mona Lisa type treatments don’t help, and our sex lives are non-existent. I was a very sexual woman, wife, enjoyed sex so much. I am very active, attractive and fit at 60 years old. But quite honestly I feel almost worthless when it comes to being intimate. It’s really sad and I wish I could have normal sex again without feeling like I’m being stabbed by a knife, hiding my face crying, and swollen. In fact, I stopped having sex altogether about 2 years ago. It just really stinks.

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@ch47

Complete hysterectomy at 44, no cancer thankfully, and had hrt for a couple years until supposedly medical community said the chance of breast cancer became enormous. Of course, stopped hrt.
Atrophy started, and had tons of bladder and urethra issues, urethra dilation became a regular part of my life.

My old urologist retired, fortunately, and my new doctor had specialties in urology and gynecology. Gave me the estrogen tabs, which worked great for years, then I started having problems again. Atrophy and very painful sex.

Moved south, and found a woman urologist who recommended compounding the meds in a non irritating cream base. She asked the compounding pharmacy to give me several samples of different base cream to try with no meds, to see which was comfortable, and they graciously did. The vaginal and urethra issues almost disappeared.

I asked my doctor if she could RX just the base cream to use as a lubricant. It works great and really inexpensive and not messy.

She also rx’d pelvic therapy/dilation which was extremely painful at first, because I was so tight, but that loosened up.

Things are better now, I am 71 and seemingly have some comfort for a while…maybe your doctors could recommend the same type of cream for a lubricant with no meds?

Good luck to all!

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My story is much the same. If i keep up with the pelvic floor exercises, estrogen cream twice a week, and coconut oil in between, I don’t have symptoms.

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@oinchats

What non estrogen moisturizer have you found works best?

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@oinchats If you scroll up on your screen you’ll see a post I made on September 22 about non estrogen moisturizers.

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@naturegirl5

@daisysocal I have struggled with the very same problem for at least 8 years. It's been so awful and at first I got nowhere. I talked with my gynecologist and my primary care doctor during that time and received very unsatisfactory answers. I felt like no one took me seriously. Finally, I was prescribed Estrace vaginal cream that I used and it did help although I still experienced some pain with intercourse on occasion. My partner and I were already using a lubricant during sex before I started having the problems.

I learned about the Mayo Clinic Women's Menopause Clinic from my nurse practitioner at Mayo Clinic. I have been seen at that clinic and it's been so very helpful. I feel like someone finally gets what I've been going through. I've seen a psychologist who specializes in sex therapy, education nurses who explain different types of vaginal moisturizers and lubricants and a nurse practitioner who did a complete exam with me holding a mirror so I could see what she saw as she educated me.

If there is a clinic like this near you I highly recommend it. Because I had endometrial cancer I can no longer use the estrogen cream (applied topically only to the lower 1/3 of the vagina by the way - instructions I got from Mayo Clinic that were different from what is on the package). I now use non-estrogen vaginal moisturizers a few times a week that work for me. And here is one other tip. My partner uses Ohnuts (I bought as a gift for us) which reduce the depth of penetration. We have both needed to change our expectations about sex . It's been more difficult for me than for him because like you I loved what my body did in the past and just let it do that. I can't do that anymore.

https://ohnut.co/

I hope this helps. It is a constant struggle to find out what will work for you but I think it's possible.

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I’m going to jump in here in spite of this thread being two years old. Is it still active?

I had a total hysterectomy at age 35. Or course no HRT was administered so over the years it all just dried up. And for 20 years it was just an “is”. Then I started having a discharge I believed to be a vaginal infection of some type, but turned out to be dead vaginal cells sloughing off. My new GYN put me on estradiol 10mg suppository. It improved over a long while so I considered myself cured. It recently raised its ugly head again and now I am back on estradiol. Of course Medicare insists I use a sloppy cream instead of the tidy suppository so I am paying out of pocket for it.
What I don’t know is whether anyone else has this shedding of dead vaginal cells?

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@pb50

I’m going to jump in here in spite of this thread being two years old. Is it still active?

I had a total hysterectomy at age 35. Or course no HRT was administered so over the years it all just dried up. And for 20 years it was just an “is”. Then I started having a discharge I believed to be a vaginal infection of some type, but turned out to be dead vaginal cells sloughing off. My new GYN put me on estradiol 10mg suppository. It improved over a long while so I considered myself cured. It recently raised its ugly head again and now I am back on estradiol. Of course Medicare insists I use a sloppy cream instead of the tidy suppository so I am paying out of pocket for it.
What I don’t know is whether anyone else has this shedding of dead vaginal cells?

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@bp50 I used the estradiol cream for several years and it worked well for me. Unfortunately, as my doctor says, "estradiol is off the table" because I was diagnosed with endometrial cancer in 2019 and have to be careful about what I use. I did not have the dead vaginal cells sloughing off as you describe when I was prescribed estradiol vaginal cream. I was having pain during intercourse so that is what started the discussion on how to manage the vaginal changes.

Does estradiol work for you?

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@naturegirl5

@bp50 I used the estradiol cream for several years and it worked well for me. Unfortunately, as my doctor says, "estradiol is off the table" because I was diagnosed with endometrial cancer in 2019 and have to be careful about what I use. I did not have the dead vaginal cells sloughing off as you describe when I was prescribed estradiol vaginal cream. I was having pain during intercourse so that is what started the discussion on how to manage the vaginal changes.

Does estradiol work for you?

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It seems to if I stick to every three days. But it seems to be a fragile improvement. I divorced about 6 years before this became a “fix it” state. So I didn’t have the sexual impact several describe here. I needed to control the yuk and sour smell. But there’s no fixing it. Miss a scheduled day or two and the foul discharge is right back. I just thought perhaps Someone else had a new approach.

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I also had to stop using estradiol when I got ER+ breast cancer. My doctor recommended using a cream with hyaluronic acid when the moisturizers and lubricants were not helpful.
When I started Tamoxifen I got a surprise. Hormone therapies can reduce estrogen so low that makes vaginal atrophy worse. But for me, 18 years postmenopausal, Tamoxifen is acting as an agonist in body parts other than my breasts. That means it promotes an estrogenic like response - so my vaginal atrophy is gone. It’s a little unnerving and it makes me worry - but evidently it is an expected response for someone like me who had really low estrogen levels before starting hormone therapy.
It also makes me wonder if the estradiol that I was using on a regular basis prior to BC diagnosis really was part of the reason the cancer started growing when it did.

One thing I wanted to mention, since we’re on this topic 🙂
Warning, warning, graphic topic following!!
Would it make any sense that part of the problem with vaginal atrophy and sex is that the clitoris goes limp? Do you also have that problem? That the clitoris won’t/can’t get aroused? It’s not just that the vaginal skin is thin and dry.
Would increasing the blood flow to the clitoris make a difference? For men, if they have sexual dysfunction, they are more likely to get a little blue pill that is a type of vasodilator and allows more blood flow to the penis. Increasing testosterone alone does not fix the problem.
So we’re looking at female issues and only thinking that estrogen is the answer? (Besides just masking the problem with lubricants). Low estrogen is definitely driving the loss of skin quality and moisture. But maybe a little extra blood flow to the area would not only improve the skin but also help the clitoris to stiffen and become aroused. If they can manufacture a little blue pill for men, maybe they should look into creating the same function for women.
I know there is supposed to be a female viagra but “both available drugs boost the activity of chemical messengers in your brain, called neurotransmitters, that are key to helping you feel aroused.” (Cleveland Clinic)
But vaginal atrophy is not a problem that can be solved in my head. I’d like to see them really find a solution to boosting blood flow to the clitoris. Maybe that along with moisturizers, hyaluronic acid, and lubricants will bring sex back again.

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@triciaot

I also had to stop using estradiol when I got ER+ breast cancer. My doctor recommended using a cream with hyaluronic acid when the moisturizers and lubricants were not helpful.
When I started Tamoxifen I got a surprise. Hormone therapies can reduce estrogen so low that makes vaginal atrophy worse. But for me, 18 years postmenopausal, Tamoxifen is acting as an agonist in body parts other than my breasts. That means it promotes an estrogenic like response - so my vaginal atrophy is gone. It’s a little unnerving and it makes me worry - but evidently it is an expected response for someone like me who had really low estrogen levels before starting hormone therapy.
It also makes me wonder if the estradiol that I was using on a regular basis prior to BC diagnosis really was part of the reason the cancer started growing when it did.

One thing I wanted to mention, since we’re on this topic 🙂
Warning, warning, graphic topic following!!
Would it make any sense that part of the problem with vaginal atrophy and sex is that the clitoris goes limp? Do you also have that problem? That the clitoris won’t/can’t get aroused? It’s not just that the vaginal skin is thin and dry.
Would increasing the blood flow to the clitoris make a difference? For men, if they have sexual dysfunction, they are more likely to get a little blue pill that is a type of vasodilator and allows more blood flow to the penis. Increasing testosterone alone does not fix the problem.
So we’re looking at female issues and only thinking that estrogen is the answer? (Besides just masking the problem with lubricants). Low estrogen is definitely driving the loss of skin quality and moisture. But maybe a little extra blood flow to the area would not only improve the skin but also help the clitoris to stiffen and become aroused. If they can manufacture a little blue pill for men, maybe they should look into creating the same function for women.
I know there is supposed to be a female viagra but “both available drugs boost the activity of chemical messengers in your brain, called neurotransmitters, that are key to helping you feel aroused.” (Cleveland Clinic)
But vaginal atrophy is not a problem that can be solved in my head. I’d like to see them really find a solution to boosting blood flow to the clitoris. Maybe that along with moisturizers, hyaluronic acid, and lubricants will bring sex back again.

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Keep searching girl. I am old and divorced so my priority isn’t my sex life, but I surely recall when it would have been 🙂

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I t seems that with or without a sex life, we still need to address the vaginal dryness problem.
I had pelvic floor PT which taught me a lot. After struggling with it at home and finding it to be tedious and another chore that i had to manage, I got a vibrator and just masturbated.
The increase in blood flow is therapeutic- or so I hope.
And, I use estrogen cream.

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This thread is very interesting. I read the entire thing as I started using Estradiol twice a week a few months ago, I didn’t think I needed it, because I had not noticed any vaginal dryness or irritation. I hadn’t had a yeast infection nor UTI in years! But, I requested it from my primary after watching several you tube videos with women Urologists! I was blown away by what these dictors said. Basically, they said bladder problems in post menopausal women is a huge issue due to vaginal atrophy/loss of estrogen. They promote local estrogen in almost all cases and even say they can’t imagine any cases where it’s not advisable. I’ll have to find the link, if it’s allowed. Anyway, I don’t know if that is true. But, it got my butt in gear to address it before I encountered problems, like my mom who has huge incontinence and irritation issues.

I saw the difference pretty fast. It’s like the old me is back! I am so glad I found it and ticked off no doctor ever suggested it to me! Why? I now feel very sexy and feel aroused a lot of the time.

I also got my dilator kit on my own, I actually already had a vibrator the size of the next to largest size dilator and so I went straight to the largest the second day and maintain with that one. I prefer the hard surface type as they are easier to clean and smoother on the skin. Personal preference I guess.

My last intimate relationship was a few years ago and I want to fix that soon. That’s a major goal for me and I want to be ready. Any tips? I’ve checked it out myself and have practiced self care all of my life, when not with a partner, so I’ve had almost daily orgasms for years. Even since menopause. I’m still apprehensive. I’ve considered seeing a PT person for pelvic floor evaluation. I’ve gotten annual pelvic exams and PAP tests, but I don’t think they check on what I need checked. Lol Has anyone gone in specifically for that reason? I just want to make sure I’m ready. Is the dilator a good indication of accommodation?

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After my lady parts began prolapsing I was desperate for help. When my gynecologist told me some women have vaginal prolapse they actually have a bulge hanging down, much like a man’s scrotum. I was not interested in a surgery ‘which may help’ I was desperate to find an answer. A close friend had mentioned she was going to ‘pelvic floor training’. I called her right away for more details. I asked my primary care physician to write an order for pelvic floor training. I was taught exercises to rebuild those muscles. The therapist told me our vaginas are ‘like a woven basket that holds things in place’. I am very pleased with the results. I will gladly continue the exercises. Occasionally, If I’m totally worn out, I’ll skip a day.

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