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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)

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@j2c

I was diagnosed with MGUS, in 2015, I believe, when a Dr. was checking why I was having numbness and tingling in both feet and discovered a strange protein in my blood and referred me to a blood Dr., and have appointments every 6 months with blood tests and every 12 months with urine tests. My feet continue to get more numb at times and less numb at times and sleep time it's not as bad but the longer I sit or stand it works it's way up my ankles. I use to be very active walking and hiking but now in the later 60s, that doesn't happen too often and really slows down my activity. I worked in mining for 40+ years and retired, but is anyone find anything that truly helps. The Drs., say no cure, just monitor. Any ideas?

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Replies to "I was diagnosed with MGUS, in 2015, I believe, when a Dr. was checking why I..."

Welcome to Connect,@j2c There are a number of other members in the MGUS support group who also have some numbness in their feet. I found a discussion started by @quarksunite who is joined by others sharing their experiences of what they’re going through and what may have worked for them to lessen the annoyance of this condition. I hope you find some helpful information.

Does anyone have neuropathy related to MGUS?
https://connect.mayoclinic.org/discussion/mgus-neuropathy/
I’m sorry to hear you’re not able to keep up your hiking activities like you used to enjoy. It’s hard to give that up! Do you do any biking?