Almost like reading about my symptoms and experiences. The most incredulous thing is the oncologist keeps saying he does not recognise any of my symptoms and the endocronologist said she could not help me because I do not have a thyroid gland.

I got much better after I got liothyronine, the active form of thyroid hormone. Just because your levels are "fine", it does not necessarily mean they are correct. Many doctors believe that as long as the thyroid blood values are within the reference levels, everything should be fine. If your T4 levels are high and your T3 levels are low, like mine were, you might be helped by adding the active form to your medication. High T4/low T3 is a symptom that your body might have difficulties converting T4 to T3.

Unfortunately I still have problems with seriuos memory issues, cramps, debilitating fatigue and tingling in fingers and lips. And, like you, I can sleep up to 18 hours a day. And still be so tired I cannot leave the bed.

But I discovered something today that might be the reason to these difficult symptoms. Hypocalcemia is a common side effect of having the thyroid removed; up to 49% have temporary hypocalcemia after thyroidectomy. Most get back the function after a few months after the parathyroid glands got healed (if they got harmed during the surgery). But if the surgeon by mistake removed one or more of the four parathyroid glands during surgery, then the hypocalcemia might remain.

I remember my surgeon saying that he removed all the glands he could find. Looking at my symptoms, it might very well be so that he removed the parathyroid glands as well. I find it so strange that none of the doctors I have seen since 2014 could identify that I might have problems with hypocalcemia, since it is such a common problem. I have repeated my memory and cognitive issues, the tingling in fingers and lips, the cramps and the unnormally long sleep periods every time I have seen a doctor or the oncologist, and still they keep repeating that they do not recognise any of my symptoms.

Please take a look into hypoparathyroidism and its side effect hypocalcemia. Maybe you can find something there that might help you.

I tried to send links, but as a new memeber I was not allowed. Maybe I can add them at a later date.

Good luck.

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