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Next course of action for undiagnosed polyneuropathy

Neuropathy | Last Active: Jan 5 6:39pm | Replies (20)

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@dthomasc

"Invisible" injuries must be maddening for doctors to diagnose. If I were in your position, I would ask the neurologist why it isn't neuropathy. If it isn't neuropathy, what is his/her reasoning to come to that conclusion? I have been fortunate that none of my neurologists have questioned that my symptoms are very real to me. The fact that my tests have not revealed a cause for my symptoms is not evidence that my symptoms do not exist. It just means that they cannot name a cause. Both of my neurologists have braced me for the reality that they may not be able to discover a cause, but neither have invalidated my symptoms. If at all possible, please try to get into the care of another neurologist who takes your condition seriously.

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Replies to ""Invisible" injuries must be maddening for doctors to diagnose. If I were in your position, I..."

Are you in the Dallas, Tx area? My neuropathy is so bad I can’t sleep.