Vestibular Schwannoma Hearing Loss Treatment?

Posted by jameslj @jameslj, Dec 6, 2023

What is the current state of treatment for those who have suffered full hearing loss due to vestibular Schwannoma? Eight years ago, my wife underwent cyber knife treatment for her tumor and eventually lost all hearing on that side as a result. At that time, she was told that the hearing loss would be permanent but every few years I look for any advancements that might benefit her. I’ve read about Dr. Samir Mardini’s team that focuses on facial paralysis and wanted to ask if his work or that of others at MC might be of interest to my wife.

Thanks in advance.

James

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Colleen Young, Connect Director | @colleenyoung | Dec 8, 2023

@jameslj, welcome. That is a good question. You're right that hearing loss related to an acoustic neuroma (vestibular schwannoma) or its treatment is usually permanent.

Did you know there is also a Hearing Loss Support Group here: https://connect.mayoclinic.org/group/hearing-loss/

What was the cause of her hearing loss on the non-tumor side? Do hearing aids work for her?

thessie | @thessie | Jan 1 3:21pm

Mayo Clinic offers updates/webinars on their research and treatment options for acoustic neuroma patients.
You may want to consider finding out more about acoustic neuroma and accessing these webinars through the acoustic neuroma association. You can visit http://www.anausa.org to access webinars from physicians treating acoustic neuroma patients around the US & to find more information on acoustic neuroma