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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 4 days ago | Replies (803)

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@nanee1

I was diagnosed with leiomyosarcoma several months ago. Grade 4. It is sad for this to happen to a young person. I can tell you what helped me. When I got the news that it was such a rare cancer confirmed by Mayo Clinic. I went to bed & cried. I then realized that that would not work. I would need to have a positive attitude & positive thoughts. I asked for prayers from those that were so inclined & positive thoughts from others. I designed a mean looking cartoon character I named Chemo Carl to fight the cancer. He is an English Bulldog wearing a pink cape & pink boxing gloves. I tell him to get in there & beat the crap out of the cancer cells. I am a religious person so I depend on Jesus to help me through this. My Oncologist & the infusion nurses are thrilled with my attitude. Guess what! My third scan showed tht the cancer had been contained & had not spread. I have my forth scan the 30th. I am looking forward to more good news! I hope this helps.

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Replies to "I was diagnosed with leiomyosarcoma several months ago. Grade 4. It is sad for this to..."

It sure does dear soul, and THANK U for taking time out to reply. GOOOO GOOOO GOOOO Chemo CARLxxxxxxx

That's great news. Our oncologist tells us that the incidence of leiomyosarcoma is 1 to 3 per million but the good news is that this type of cancer is very susceptible to chemotherapy.

Would love a pic of chemo Carl. He also has leiomyosarcoma that started in the muscle under his right arm. His tumor grew to 900 grams in 3 months, explosive growth, treated with surgery and radiation in October 2022. It has resurfaced in his right axilla and there is a suspicious lesion in his left lung. Started chemotherapy this week. He is 44 years old. I retired in Merida, Mexico. When he was diagnosed he didn't have health insurance so he flew to Merida where he got FAST skilled excellent medical care. Now he has BCBS Florida insurance and it looks like we'll be able to use it here to defray the cost of chemotherapy.