Sorry for your long struggle w DIC, especially late effect of total kidney failure! Pulmonary embolism, heart issue serious also. I never heard of this until 12/22/23, my niece thought she had flu & went to urgent clinic:
“My 45-y/o niece ended up with DIC after walk-in clinic sent her by ambulance to hospital for septic shock (she thought she had flu); but had strept pneumonia. She went to ICU quickly, her fingers were turning purple. A clot in Rt wrist found by IV site. Surgery to remove clot. Then surgery to remove hand below wrist, so she can have more movement with a hand prosthesis. Now watching purple toes for demarcation. She’s on IV Heparin drip & vasopressors to live & preserve her major organs; at the expense of her extremities. (They found out her spleen was shriveled or small or something, so the pneumonia was bad). She is in a Level I trauma hospital, but I wonder if that is the right place? I read Cleveland Clinic is good with DIC. But being so serious, hard to transfer at this point? It’s all so confusing for this rare DIC. Podiatrist was hopeful for skin on toes. But ortho unsympathetically said amputate above toes. Shocking & sad, so young.”
Now it seems to me, that you still have your extremities, but your major organs were severely affected. Whereas, she is treating to preserve organs at expense of digits. Seems a big difference in Drs’ treatments!