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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 hour ago | Replies (7051)Comment receiving replies
Hi, My name is David and I have many health issues. I will mention the health issue which affects my quality of life the most. It's pain, pain that is hard to describe so others can understand, pain that affects those close to me, pain that has turned my life upsidedown, pain that has no cure only very limited treatment available to help one get through each day of suffering. My pain comes from a disease or condition, I added condition because I'm not sure calling it a disease is correct. I have been told by two different neurosurgeons I have arachnoiditis caused by the dyes that were used many years ago for tests involving the spine, and neither one of them could or would help me. I'm searching for a doctor who treats arachnoiditis in my area, as close as possible to my home. Traveling is almost impossible because of the pain or the lack of money. The only treatment that helped me have a decent quality of life was from opioids and we all know about our government's war on opioids. My opioids were reduced so much I went from being very active to in bed almost 24 hours a day. My ability to continue fighting this horrible is almost gone.I'm rambling on here and having trouble concentration I'll close for now.
Replies to "Hi, My name is David and I have many health issues. I will mention the health..."
Hello @dbk,
Here is the link to a Connect conversation about arachnoiditis that @jimhd mentioned in his post to you. Just click on the link and read the many posts.
https://connect.mayoclinic.org/discussion/i-am-desperate-to-find-a-dr-who-treats-arachnoiditis-i-live/
Here is a link from Mayo's website about pain treatment for this disorder, https://www.mayoclinic.org/departments-centers/pain-medicine/sections/conditions-treated/orc-20450067
After you read these links, will you post again?
Hello David and welcome to Connect. I'm very sorry to learn of your suffering. Chronic pain is a world in which no-one can understand until living in it. You have found a team here of chronic pain allies. If nothing more may this experience bring you compassion and encouragement to keep fighting. I feel for you regarding opiods and the fact that in many cases of chronic pain there simply is no substitute. I'm an opioid user and by choice keep trying other options to reduce my need for opiod pain management. Currently I'm exploring medical cannabis and steadily climbing until hopefully I find a match for my pain. My heart goes out to you. I watched my mom (Chronic pain suffer of 40 years) get flat out cut off of opiods from her pain management Dr because she refused stimulator implants and injections. She was able to work with her PCP who she had a long, strong relationship over the years and continue her opiod treatment as she is by no means an abuser. My wish for you is that you find comfort in talking about your pain here on Connect, learn from others experience with your diagnosis and develop a plan going forward of how you will not let pain defeat you entirely. Here for you.
Rachel
@dbk I'm so sorry you are in so much pain. I have fibromyalgia which affects not only my muscle nerves Besides the arachnoditis do you have other autoimmune problems. ? For me exercise helps a lot I do take Tramadol have since 2005 when I had a fracture of my back. I hope you can find something to give you relieve. Best wishes to you
Prayers for you
Connect
David, I know the feeling of terrible pain for which there's no known cure. I know that there's been an active discussion about arachnoiditis, if you can scroll down through list of discussions under chronic pain. I haven't figured out how to send copy and send links, but there are others who can. Maybe @johnbishop or @hopeful33250 could help out with helpful links.
I'm a lucky beneficiary of the government opioid fiasco, as well. But I won't write anything more so John or Theresa can see this message.
Jim