I was recently diagnosed with Bronchiectasis.

Posted by mmteach @mmteach, May 10, 2016

I was recently diagnosed with Bronchiectasis. No symptoms yet just starting different tests- another CAT scan, pulminary function test, and possible bronchoscopy. Any advice/suggestions would be greaty appreciated. Thank you!

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barb7 | @barb7 | Jan 1 6:45am

I just got a nebulizer, it really helps me alot

mpowers | @mpowers501 | Jan 1 7:01am

Research, research, research all possible side effects from the antibiotics your doc wants you on, then go over them with him/her. I honestly believe they are not aware!!! I now have neuropathy because of an unaware doctor!! I'll tell my story later.

Sue, Volunteer Mentor | @sueinmn | Jan 1 9:28am

In reply to @lozza "Hello, I would be ever so grateful to find out what brand of Colloidal Silver and..." + (show)

Hello, and welcome to Mayo Connect. Can you tell us a little about your treatment so far? Are you seeing a doctor who is well-versed in treating MAC?
Sue

pacathy | @pacathy | Jan 1 2:39pm

In reply to @lenorj "Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having..." + (show)

Are you near Philadelphia? Penn Medicine’s Pulmonary Department has a Bronchiectasis and MAC program. I was able to get an appointment last summer and have seen my doc twice. He seems very thorough and kind.

jaguarjenn | @jaguarjenn | Oct 24 5:29am

I am so sorry that you are suffering like this. I will include you in my prayers. There is a Scripture in the Bible that says " By his Stripes you are healed". I believe you are receiving a healing now. Love Jaguarjenn

lvnl | @lvnl | Nov 17 8:27am

In reply to @lenorj "Does anyone have a suggestion for a MAC specialist in New Jersey? I am not having..." + (show)

Don't know abt NJ but if you can get in to NYC, I am seen at NYU's bronchiectasis & NTM program. My doc is Dr Addrizzo -Harris. The team there is excellent. Others here are seen at Mt Sinai and speak highly of the program there.

lenorj | @lenorj | Nov 17 9:20am

In reply to @lvnl "Don't know abt NJ but if you can get in to NYC, I am seen at..." + (show)

Thanks so much for the info. I have an appointment with Dr Adrrizzo-Harris in December!

lvnl | @lvnl | Nov 17 8:51pm

In reply to @lenorj "Thanks so much for the info. I have an appointment with Dr Adrrizzo-Harris in December!" + (show)

I'm pleasantly surprised and happy for you that you got the appointment so soon! Probably doesn't feel soon to you, but I think the doc who referred me had to intervene to get me an appointment in reasonable time.

lenorj | @lenorj | Nov 18 6:34am

In reply to @lvnl "I'm pleasantly surprised and happy for you that you got the appointment so soon! Probably doesn't..." + (show)

I think I was just very lucky to have gotten a canceled appointment. Originally I was told maybe Feb or March. Thanks again for your advice.

laborday24 | @laborday24 | Nov 19 7:00pm

In reply to @sueinmn "Hello, and welcome to Mayo Connect. Can you tell us a little about your treatment so..." + (show)

Hey Sue. I am at njh right now. Found out I have Mac in a cavity. Don’t know exactly what will be done but maybe amicasin then arikayce. Can you tell me anything about this. Need to work on airway clearance

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