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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: 2 days ago | Replies (171)

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@mkmann

I was diagnosed with Mycosis Fungoides maybe 10 years ago and have never gone past Stage 1A. I am not doing lightbox treatment because I have a history of a bit of melanoma. I see a specialist every six months who tells me not much has changed. What's interesting to me is that I think I had this 45 years before the dermatologist I'd been seeing for years decided it was MF and did a biopsy. The original rash appeared all over my body when I was 11, which was humiliating, and there was no explanation for it. It eventually went away except for places that don't see the sun. Honestly, though, after breast cancer, Long Covid, and a few other illnesses like Ehlers-Danlos Syndrome, this one is the least of my worries.

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Replies to "I was diagnosed with Mycosis Fungoides maybe 10 years ago and have never gone past Stage..."

Thanks for writing. I am happy to hear that you have been Stage 1A for 10 years with no treatment. I think the oncologist is being more cautious because I have a history of NHL. The cell type is different but I can’t get an answer whether the cancers are related. I am coming up to my one year anniversary so I will just go with the flow.