← Return to I have smoldering Myeloma. Does anyone have this diagnosis?

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@brokendoll

Super late to the party but I was recently diagnosed with smoldering myeloma (still going through testing to determine damage.) Plasma cells at 20%, legion on C3. Dr said I "shouldn't" be having symptoms but I have been for quite some time: intermittent fatigue, weakness, bone pain, back pain and tender at C3, very strange pinpoint sores on knuckles with swelling, numb toes, Reynaud's syndrome, infections that take a long time to heal, and I just woke up in the middle of the night with another tender bump/sore on one of my toes (they tend to pop up during the night).

All the info I find on the 'nets say that there are no symptoms but I feel vindicated that others are experiencing them too. I wonder if people just have super busy lives or get these unusual but easily-dismissed symptoms and don't pay them much mind. ? I have been out of work for a while, no kids, a relatively quiet life so I notice small changes in my body. Hopefully, though, these aren't 'created' by my mental state. If so, wow. How amazing is our physiology?

It's been a very long time since the OP. I am hoping for at least a slow progression and high quality of life to you all.

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Replies to "Super late to the party but I was recently diagnosed with smoldering myeloma (still going through..."

Follow Mayo Multiple Myeloma for correct and current information. There is other information on the web regarding your illness, but some is not current or correct. Order an information packet about Multiple Myeloma from Mayo Cancer Center and educate yourself. For me it was like returning to college. You need to work with a Hematologist and not just a family doctor . I sincerely hope this helps you.