1. < Pancreatic Cancer

Ductal adenocarcinoma, colloid (mucinous) type

Posted by capricorn24 @capricorn24, Aug 31, 2023

Hello!

My mother (61y) was diagnosed with pancreatic cancer after CT.
The cancer is 8cm and has started from the tail. She was also given a biopsy, which described the cancer as “pancreatobiliar ductal adenocarcinoma, colloid (mucinous) type”. Today she visited the doctor and they didn’t offer any hopeful prognosis. She will have heavy chemo for 3 days.

I am very confused about her diagnosis. The doctor said that the type that she has is very aggressive and that metastasis have spread in liver and lymph nodes. From what I’ve gathered from the literature, the colloid type is usually not that aggressive. Am I wrong?

Also, how is it possible that the doctor prognoses only weeks/months to live, if my mother blood tests are in order and she doesn’t have any symptoms other than ascites? She doesn’t have jaundice, weight loss, pain, nausea, fever etc. She is in great health and doesn’t have any siding illnesses.

Thank you for any feedback you can provide about this condition!

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capricorn24 | @capricorn24 | Dec 9, 2023
In reply to @ncteacher "I love that your mom is feeling better and even shoveling snow! I love shoveling snow..." + (show)
@ncteacher

I love that your mom is feeling better and even shoveling snow! I love shoveling snow (or at least I used to). You're right--it can be very tricky to get consistent info from all the MDs involved in your mom's case. I know all of the radiology reports on my CT scans seems to vary in thoroughness and detail. You're also correct in that CT scans can't see everything. My oncologist told me the scan couldn't spot anything less than 1.5 cm; I've seen online that it can't spot anything less than 1 cm. That could potentially skip some mets. It also seems like radiologists interpret scans differently, and it's difficult to get any consistency. So I understand your frustration.

I'm glad her MD worked in the United States; that might help with regards to training and experience. Can her MD consult with his/her former colleagues in the US? Or is there any way your mom can travel to another country to obtain a second opinion? Perhaps she could get CDs of her scans and consult with doctors elsewhere to see whether she can gain some clarity about her situation. In any event, I would be thrilled with what appears to be her progress in terms of comfort and energy level. I hope your online searching yields more info on the mucinous type. Best wishes!

Jump to this post

Thank you so much for your kind thoughts.

Fortunately my mother gets her treatment in the best hospital of our country. Maybe if her doctor recommended a specific institution abroad, she would consider it. Right now I don’t think that will happen though. At least we can visit her as often as we can. She has four small grandchildren and she enjoys having them around. Children really have the power to put a smile on everyone’s face, so I am so very grateful for the children, especially in this situation we’re in.

REPLY
jswiss | @jfranc1 | Dec 28, 2023

Hi everyone,
What treatment for Colloid Carcinoma?

I had Whipple surgery on 11/28/2023 for an IBMN which was removed and diagnosed as Colloid Carcinoma. The biopsy show 36 lymph nodes tested and the resection as negative. Anyone have any treatment post Whipple with this diagnosis?

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 29, 2023
In reply to @jfranc1 "Hi everyone, What treatment for Colloid Carcinoma? I had Whipple surgery on 11/28/2023 for an IBMN..." + (show)
@jfranc1

Hi everyone,
What treatment for Colloid Carcinoma?

I had Whipple surgery on 11/28/2023 for an IBMN which was removed and diagnosed as Colloid Carcinoma. The biopsy show 36 lymph nodes tested and the resection as negative. Anyone have any treatment post Whipple with this diagnosis?

Jump to this post

Welcome @jfranc1, I moved your question about treatment for colloid carcinoma to this existing discussion:
- Ductal adenocarcinoma, colloid (mucinous) type https://connect.mayoclinic.org/discussion/ductal-adenocarcinoma-colloid-mucinous-type/

I did this so that you can click the link to read previous posts and easily connect with members like @capricorn24 @margefromwi and others.

Has further treatment been suggested for you?

REPLY
1 reply
jswiss | @jfranc1 | Dec 30, 2023
In reply to @colleenyoung "Welcome @jfranc1, I moved your question about treatment for colloid carcinoma to this existing discussion: -..." + (show)
@colleenyoung

Welcome @jfranc1, I moved your question about treatment for colloid carcinoma to this existing discussion:
- Ductal adenocarcinoma, colloid (mucinous) type https://connect.mayoclinic.org/discussion/ductal-adenocarcinoma-colloid-mucinous-type/

I did this so that you can click the link to read previous posts and easily connect with members like @capricorn24 @margefromwi and others.

Has further treatment been suggested for you?

Jump to this post

No, I have not been suggested for further treatment.....thanks for your help!

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