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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 3, 2019
In reply to @elmay "I know that self-diagnosis is a dangerous thing, but I also know that those of us..." + (show)
@elmay

I know that self-diagnosis is a dangerous thing, but I also know that those of us who suffer with unknown pain keep searching for the answer. Recently I read quite a lot about CSF Leakage, and I truly believe that is what is going on for me. Does anyone have first hand experience with cerebral spinal fluid leakage? I would love to hear from you about what symptoms brought you to the diagnosis. The more I read about it the more I find I have almost all the symptoms. I have an appointment with a neurologist on the 21st. I hope I can deal with the non-stop headache till then. I also hope he doesn't laugh at me for trying to be my own doctor. Please let me know what you know about this problem. Thanks

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Hello

The only thing I can attest to is a fluid leak after my spinal tap that left me with a spinal headache. I've been debilitated by migraines and in and out of urgent care for such but, this headache was very distinctive! Ended in ER receiving a blood patch and was good there after.

Wishing you all the best for a diagnosis.
Rachel

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Donald | @donfeld | Oct 3, 2019
In reply to @lioness "@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like..." + (show)
@lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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I am not sure what kind of doctor you talkin about but he's a God sent for you because I don't know any doctor that would give that many pills at one time without having a problem with the law. They are highly regulated and in fact when you sent it to the pharmacy it's got to be signed and all this is sent to the DEA. That's why I'm taking this Tramadol which is under 50 well under in order to not be regulated and so he can prescribe it without a problem. I checked with the pharmacy in that is 100% all right but if I went to Tramadol 60 or hydrocodone I would have a problem with any doctor that I know of. Your thoughts

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 3, 2019
In reply to @lioness "@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like..." + (show)
@lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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Thank you for your insight. It's helpful.

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lioness | @lioness | Oct 3, 2019
In reply to @donfeld "I am not sure what kind of doctor you talkin about but he's a God sent..." + (show)
@donfeld

I am not sure what kind of doctor you talkin about but he's a God sent for you because I don't know any doctor that would give that many pills at one time without having a problem with the law. They are highly regulated and in fact when you sent it to the pharmacy it's got to be signed and all this is sent to the DEA. That's why I'm taking this Tramadol which is under 50 well under in order to not be regulated and so he can prescribe it without a problem. I checked with the pharmacy in that is 100% all right but if I went to Tramadol 60 or hydrocodone I would have a problem with any doctor that I know of. Your thoughts

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@donfeld I,ve heard this before I only know that in 05 I fractured my back at work and this was the med that my orthopedic Dr. gave me at that time . My Dr. knows this and she is fine in prescribing it for me At first she had to fax the script in then I had to take it to the pharmacy now I just call for a refill I'm very fortunate to be able to get it as all those years it was the only thing that gave me relieve. I'm sorry you cant get it . TramadolHCL is 50mg has been since 05 never higher at first I was on 6 a day then decreased myself with Dr. permission to only 1 now . Even Vicodin at one point I was worried about addiction but he told me as long as I take it as He ordered I wouldn't get addicted . I don't take that anymore.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 3, 2019
In reply to @donfeld "You should only take painkillers when you need it and the CBD is something you do..." + (show)
@donfeld

You should only take painkillers when you need it and the CBD is something you do everyday twice a day but there are other treatments as I mentioned before as anti-inflammatories and eating properly. You've got to get off the opioids and try and exercise as if you can keep moving that would really help. That pemf back that I just got sent to me as I've tried it in two days and I definitely feel better and I just started. I hope I'm not imagining it but this get your blood circulating and it Technologies been around for years, but doctors do not prescribe it cuz it's not FDA-approved and it's not covered by insurance Spirit you've got to think out of the box

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Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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2 replies
Donald | @donfeld | Oct 3, 2019
In reply to @rwinney "Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking,..." + (show)
@rwinney

Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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I am not familiar with that at all but all I know is if you're interested just look up PMC or doctor Pawluck in regards this treatment and he has a number of ideas about what the machine could do and cannot do as I just found that it's very good for neuropathy with diabetics. It is helping me and I can only say what I could feel but if you go to buy one check with me first cuz I have much better prices than he can offer but he is the guru of pemf. Just Google his name and it should come up. Anybody listen go and learn about this treatment because it can help you but it's out of the box it's not FDA-approved doctor Doan will tell you about it because it's not covered under insurance. My doctor at the Mayo said it can't hurt it could only help. And that's the first honest opinion I've gotten

REPLY
1 reply
lioness | @lioness | Oct 3, 2019
In reply to @rwinney "Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking,..." + (show)
@rwinney

Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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4 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 3, 2019
In reply to @donfeld "I am not familiar with that at all but all I know is if you're interested..." + (show)
@donfeld

I am not familiar with that at all but all I know is if you're interested just look up PMC or doctor Pawluck in regards this treatment and he has a number of ideas about what the machine could do and cannot do as I just found that it's very good for neuropathy with diabetics. It is helping me and I can only say what I could feel but if you go to buy one check with me first cuz I have much better prices than he can offer but he is the guru of pemf. Just Google his name and it should come up. Anybody listen go and learn about this treatment because it can help you but it's out of the box it's not FDA-approved doctor Doan will tell you about it because it's not covered under insurance. My doctor at the Mayo said it can't hurt it could only help. And that's the first honest opinion I've gotten

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Amen to that!

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 3, 2019
In reply to @lioness "@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem..." + (show)
@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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Thank you. Yes, we are! 😉

REPLY
summertime4 | @summertime4 | Oct 3, 2019
In reply to @lioness "@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem..." + (show)
@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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@lioness I also used the Topricin cream. I have neuropathy in my legs and feet and also have fibromyalgia. My sister recommended this cream and I am very pleased. I use each evening on my legs and feet. It helps so much, even with the numbness. I ordered it from Amazon (of course). My sister orders directly from the site and says they always have sales.

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