← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@williampconley

Hi ! I saw Dr. Rowin. I have done 1 month on 5mg. First echo results were so good, they dropped me to 2.5mg. Second echo #s were such that I STAYED on 2.5mg, even though I had a gut feeling I should be on 5mg. Had 3rd echo and results were still really good, but in the range such that I could go back to 5mg. Just started that dosage Dec. 22. No extreme changes in symptoms yet, but I feel like I have to give the 5mg a multi month test first. Again, my symptoms weren't too bad to begin with. The doctors have stated that they think I'll never be on 10mg due to the fact that I am a "super responder" to Camzyos. That analysis was based on my gradients being reduced by nearly 2/3 during the first 30 days !

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Replies to "Hi ! I saw Dr. Rowin. I have done 1 month on 5mg. First echo results..."

This was exactly what happened to me! I was decreased to 2.5mg after being a “super responder” as well (Dr. Rowins words). Unfortunately, I haven’t noticed a great improvement so far but no down side to date. I’m hopeful this Weill improve over time. Keep us posted.