hello

Posted by joanierav @joanierav, Dec 28, 2023

i'm new, it's nice to meet everybody. my name is joan.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Hello Joan @joanierav, Welcome to Connect. Have you been diagnosed with polymyalagia rheumatica (PMR)? Do you have any questions you are trying to get answered?

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thank you, john. i was diagnosed by rheumy, 2 years ago.
my question: why do i have such difficulty tidering? dr wants me to go down but pains return.

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@joanierav

thank you, john. i was diagnosed by rheumy, 2 years ago.
my question: why do i have such difficulty tidering? dr wants me to go down but pains return.

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thank you, john. i was diagnosed by rheumy, 2 years ago.
my question: whybdo inahve suxh diffixulty tidering? dr wants me to taper but pains always come back (hips/shoulders).

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@joanierav

thank you, john. i was diagnosed by rheumy, 2 years ago.
my question: whybdo inahve suxh diffixulty tidering? dr wants me to taper but pains always come back (hips/shoulders).

Jump to this post

@joanierav, I'm sorry to hear you are having trouble tapering. My first time with PMR took me 3 and half years to taper off. I spent the last six months of that time going back and forth between 1 mg and 1/2 mg prednisone until I could stop without any significant pain, for me that was below a 2 on my pain scale. You might be trying to taper too much too fast. Each of us are different but my Mayo rheumatologist always told me I have to listen to my body. He had me keep a daily log of my pain on a scale of 1 to 10 along with my dosage of prednisone. If my pain was higher than 2 when I tried to taper down, I tried upping my dosage to half of what I just tapered down to see if I could still keep at a lower dose than my previous one.

You might find the following discussion helpful:
--- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/

You also might want to look through the PMR discussions on tapering prednisone for other suggestions. Here's a search link with a list of the discussions that might also be helpful:
https://connect.mayoclinic.org/search/discussions/?search=tapering+prednisone

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Welcome. You might also want to look into Healthunlocked.com which offers advice, too.only the best to you.

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