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Peripheral Neuropathy vs. Erythromelalgia

Autoimmune Diseases | Last Active: Dec 30, 2023 | Replies (47)
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@debinsf8

Hello Deb, I just found this discussion group and am curious whether you have found anything that is helping you with the SFN and EM. I have had EM since 2020, and each year the burning episodes get worse and last longer. I am using lidocaine anytime I need to wear shoes and also each night before bed, as well as taking Tylenol or Ibuprofen. How are you doing with it?

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Replies to "Hello Deb, I just found this discussion group and am curious whether you have found anything..."
John, Volunteer Mentor | @johnbishop | Dec 29, 2023

Hello @debinsf8, Welcome to Connect. While you wait for @debschults to respond here is some information from a post earlier in this discussion that you might find helpful.

More resources on Erythromelalgia:
National Organization for Rare Disorders (NORD) – Erythromelalgia: https://rarediseases.org/rare-diseases/erythromelalgia/
The Erythromelalgia Association – FAQs: https://erythromelalgia.org/resources/faqs/

You may also be interested in these discussions to read what other members have shared:
– Erythromelalgia: https://connect.mayoclinic.org/discussion/erythromelalgia/
– Burning Feet syndrome https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

@jlander, @gardeningjunkie, @dipperlip1, @lilymol and others may also have some suggestions or information to share with you that might help with the burning episodes.

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