Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear of your new diagnosis. A new diagnosis such as this can be concerning and it is good to meet wth others who are on this same journey. We have another discussion group that deals with Dipnech. Here is the link,
https://connect.mayoclinic.org/discussion/carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech/
As you read the posts you will meet others such as @triveraderubio @amd12 @rogo @larenn. Feel free to read their posts and to ask questions and/or express your concerns. The members of Connect are eager to support each other.

As you likely know "diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is a rare and poorly understood lung condition that is characterized by the abnormal overgrowth of certain cells in the lung (called pulmonary neuroendocrine cells) that receive signals from nerve cells (neurons) and produce hormones."
Read more here https://rarediseases.info.nih.gov/diseases/10780/diffuse-idiopathic-pulmonary-neuroendocrine-cell-hyperplasia

Please share, as you are comfortable doing so, if there were other symptoms other than the persistent cough that alerted your doctors to diagnosis this issue. Did it take a long time to be diagnosed?

Hello @ocean3131, as @hopeful33250 mentioned, I have moved your discussion and combined it with an existing discussion titled, "Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH" - https://connect.mayoclinic.org/discussion/carcinoid-tumorlets-neuroendocrine-tumorcell-hyperplasia-dipnech/. Here you can meet other members discussing their diagnosis of DIPNECH.

Hi @ocean3131
I also have DIPNECH and you can read my other posts for more details but coughing constantly for 30 years was a nightmare. Also coughed up clear mucus all day and had shortness of breath issues. I’ve been taking monthly octreotide injections for almost 3 years now and it has been life changing in stopping the cough and mucus and improving the shortness of breath. It was like I had bronchitis for 30 years straight. It annoyed me and everyone around me so we’re all thankful for octreotide.

Have you seen a NETs specialist? I was told the symptoms are not caused by the tumors we can see but by hundreds or thousands of tiny nodules that line my airways and don’t show up on the CT scan. You need someone who has treated other DIPNECH patients. My case is managed by a multidisciplinary lung NETs team at UCLA but I receive the injections at my local breast oncology office (I have breast cancer too) so I don’t have to drive to LA for them. Very convenient. I have video calls with my UCLA lung team. You came to the right group. DIPNECH is rare. Feel free to send me a private message as well.