Thank you for your wonderful response! Yes, a shot on heart for sure. First, issue with any health issue a runner for 40 years and still moving! I’m early on with Adenocarcinoma right lung. Scheduled for 3 treatments.
I trust you are well and of course Blessed going in to your 26th year.
This support group is absolutely wonderful and I’m Thankful to have found the group!!
Hi ...just saw your post. How are you doing. Have you had any side effects? Other treatments? I was diagnosed two years ago with multifocal lung cancer and had something in both lungs. They did VAT surgery on RUL first and last May I had VAT surgery on LUL. I had SBRT (3 sittings) on a different nodule in the RUL in August (3 months after surgery) and within two months I developed increased breathing problems - that is I was panting when just getting up from the sofa. I have had shortness of breath from the beginning of diagnosis (my oxygen levels drop with exertion) but this panting was a significant increase. Pulmonologist put me on Prednisone and that took it away. My diagnosis is radiation-induced pneumonitis (they would have told you that was one of the risks) . Have you had any side effects? Wondering how many people here have experienced this side effect. I have been told they cannot give me immunotherapy now.
Hi ...just saw your post. How are you doing. Have you had any side effects? Other treatments? I was diagnosed two years ago with multifocal lung cancer and had something in both lungs. They did VAT surgery on RUL first and last May I had VAT surgery on LUL. I had SBRT (3 sittings) on a different nodule in the RUL in August (3 months after surgery) and within two months I developed increased breathing problems - that is I was panting when just getting up from the sofa. I have had shortness of breath from the beginning of diagnosis (my oxygen levels drop with exertion) but this panting was a significant increase. Pulmonologist put me on Prednisone and that took it away. My diagnosis is radiation-induced pneumonitis (they would have told you that was one of the risks) . Have you had any side effects? Wondering how many people here have experienced this side effect. I have been told they cannot give me immunotherapy now.
I had SBRT treatment twice. First was for two tumors (one in each lung) and two years later for a tumor in my right lung. Both times I had pneumonitis 90 days after treatment. Breathing was very difficult with exertion, I wound up sleeping upright to breathe. Prednisone fixed the problem after months on the drug but caused diabetes that had to be managed. Also had adverse affects on my heart. I’m curious why you cannot have immunotherapy now, what caused that? I have a new tumor emerging and was hoping immunotherapy might be an option.
@carlies, I do know other stage IV patients who have had SBRT. The type of lung cancer that I have is treated with a targeted therapy (pills). The cancer eventually starts to find its way around the therapy, and we'll often see nodules that start to pop up throughout the body. Sometimes, if the number of nodules is low, a patient will continue to take the targeted therapy while the tumors are successfully treated with SBRT. We generally want to stay on the same therapy for as long as possible, because we know that someday we'll run out of treatment options. The longer we can stretch out one treatment, generally the better.
I had SBRT treatment twice. First was for two tumors (one in each lung) and two years later for a tumor in my right lung. Both times I had pneumonitis 90 days after treatment. Breathing was very difficult with exertion, I wound up sleeping upright to breathe. Prednisone fixed the problem after months on the drug but caused diabetes that had to be managed. Also had adverse affects on my heart. I’m curious why you cannot have immunotherapy now, what caused that? I have a new tumor emerging and was hoping immunotherapy might be an option.
Sorry for delay in responding. My browsers needed to be reset to access this site.
My CT scans have also indicated the presence of Interstitial Lung Disease (there are many types!) as well as my multifocal lung cancer. After my Pulmonologist indicated "radiation induced pneumonitis" and told me I could not do immunotherapy, I did some research and found the following articles that explains some things:
"Management of Lung Cancer in the Patient with Interstitial Lung Disease" https://academic.oup.com/oncolo/article/28/1/12/6847063
Here is another article (more technical)
"Radiation recall pneumonitis induced by PD-1/PD-L1 blockades: mechanisms and therapeutic implications." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7499987/
Sorry for delay in responding. My browsers needed to be reset to access this site.
My CT scans have also indicated the presence of Interstitial Lung Disease (there are many types!) as well as my multifocal lung cancer. After my Pulmonologist indicated "radiation induced pneumonitis" and told me I could not do immunotherapy, I did some research and found the following articles that explains some things:
"Management of Lung Cancer in the Patient with Interstitial Lung Disease" https://academic.oup.com/oncolo/article/28/1/12/6847063
Here is another article (more technical)
"Radiation recall pneumonitis induced by PD-1/PD-L1 blockades: mechanisms and therapeutic implications." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7499987/
Thank you for the reference articles, very interesting reading. I scanned them quickly and plan to go deep in preparation for my visit to Mayo next week. SBRT isn’t an option because the region had previously been radiated. Immunotherapy hadn’t been on the table and now I suspect why. Surgery had previously been discounted because of my severe COPD, but now is under discussion. This will make for an interesting discussion with my Onco.
Thank you for the reference articles, very interesting reading. I scanned them quickly and plan to go deep in preparation for my visit to Mayo next week. SBRT isn’t an option because the region had previously been radiated. Immunotherapy hadn’t been on the table and now I suspect why. Surgery had previously been discounted because of my severe COPD, but now is under discussion. This will make for an interesting discussion with my Onco.
I too am at Mayo (2 years since diagnosis), and do PET scan and see RadOnc second week Jan. Ablation was mentioned last time...it is mentioned in article. May be a better choice for me. I too will have an interesting discussion! I will be interested in what they tell you.
Are you multifocal lung cancer? You mentioned radiation in both lungs...therefore multiple nodules. But were they considered metastasis or independent tumors?
Here is some more prep for you! I always like to define things:
What are interstitial diseases of the lungs?
Interstitial lung disease (ILD) is an umbrella term used for a large group of diseases that cause scarring (fibrosis) of the lungs. The scarring causes stiffness in the lungs which makes it difficult to breathe and get oxygen to the bloodstream. Lung damage from ILDs is often irreversible and gets worse over time
hat is the difference between ILD and PF?
There are more than 200 types of interstitial lung diseases (ILD), which are characterized by varied amounts of inflammation, scarring, or both, that damage the ability of the lung to absorb oxygen from the air. Pulmonary fibrosis (PF) means scarring of the lung and can be seen in many types of ILD.
What is another name for interstitial lung disease?
Interstitial lung disease (diffused parenchymal diseases) are a heterogeneous group of disorders characterized by fibrosis (scarring) of the lungs. These are classified on the basis of histopathological, radiologic and clinical parameters.Jul 31, 2023
What is the most common cause of interstitial lung disease?
Interstitial lung disease can be caused by long-term exposure to hazardous materials, such as asbestos. Some types of autoimmune diseases, such as rheumatoid arthritis, also can cause interstitial lung disease. In some cases, however, the causes remain unknown. Once lung scarring occurs, it's generally irreversible.Apr 25, 2023
hat are the 4 types of ILD?
The ILD is differentiated into four categories: lung-only (or native parenchymal) disorders, systemic disease-related disorders, exposure-related disorders, and vascular disorders (Table 2).Mar 21, 2022
Medicines
1. Bronchodilators can relax the muscles around your airways. This helps open your airways and makes breathing easier. ...
2. Corticosteroids can help treat inflammation in your lungs. You may take these with an inhaler or as a pill. ...
3. Antifibrotics (nintedanib and pirfenidone) can help slow down lung damage.
Mar 24, 2022
What are the 3 C's of interstitial lung disease?
Interstitial lung diseases classically produce the "3Cs": cough, clubbing of the nails, and coarse crackles on auscultation 6.Oct 25, 2023
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I appreciate you taking the time to answer my question. Thank you so much.
I'm responding very late, and I am sorry for that. How have you done with your treatments?
Hi ...just saw your post. How are you doing. Have you had any side effects? Other treatments? I was diagnosed two years ago with multifocal lung cancer and had something in both lungs. They did VAT surgery on RUL first and last May I had VAT surgery on LUL. I had SBRT (3 sittings) on a different nodule in the RUL in August (3 months after surgery) and within two months I developed increased breathing problems - that is I was panting when just getting up from the sofa. I have had shortness of breath from the beginning of diagnosis (my oxygen levels drop with exertion) but this panting was a significant increase. Pulmonologist put me on Prednisone and that took it away. My diagnosis is radiation-induced pneumonitis (they would have told you that was one of the risks) . Have you had any side effects? Wondering how many people here have experienced this side effect. I have been told they cannot give me immunotherapy now.
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Hug
2 ReactionsI had SBRT treatment twice. First was for two tumors (one in each lung) and two years later for a tumor in my right lung. Both times I had pneumonitis 90 days after treatment. Breathing was very difficult with exertion, I wound up sleeping upright to breathe. Prednisone fixed the problem after months on the drug but caused diabetes that had to be managed. Also had adverse affects on my heart. I’m curious why you cannot have immunotherapy now, what caused that? I have a new tumor emerging and was hoping immunotherapy might be an option.
-
Like -
Helpful -
Hug
1 ReactionReading comments about SBRT… Anyone with stage 4 NSCLC who has had this?
I could be wrong, but I think it’s for stages one and two. I had 5 rounds and was diagnosed with stage 1.
@carlies, I do know other stage IV patients who have had SBRT. The type of lung cancer that I have is treated with a targeted therapy (pills). The cancer eventually starts to find its way around the therapy, and we'll often see nodules that start to pop up throughout the body. Sometimes, if the number of nodules is low, a patient will continue to take the targeted therapy while the tumors are successfully treated with SBRT. We generally want to stay on the same therapy for as long as possible, because we know that someday we'll run out of treatment options. The longer we can stretch out one treatment, generally the better.
-
Like -
Helpful -
Hug
1 ReactionSorry for delay in responding. My browsers needed to be reset to access this site.
My CT scans have also indicated the presence of Interstitial Lung Disease (there are many types!) as well as my multifocal lung cancer. After my Pulmonologist indicated "radiation induced pneumonitis" and told me I could not do immunotherapy, I did some research and found the following articles that explains some things:
"Management of Lung Cancer in the Patient with Interstitial Lung Disease"
https://academic.oup.com/oncolo/article/28/1/12/6847063
Here is another article (more technical)
"Radiation recall pneumonitis induced by PD-1/PD-L1 blockades: mechanisms and therapeutic implications."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7499987/
Thank you for the reference articles, very interesting reading. I scanned them quickly and plan to go deep in preparation for my visit to Mayo next week. SBRT isn’t an option because the region had previously been radiated. Immunotherapy hadn’t been on the table and now I suspect why. Surgery had previously been discounted because of my severe COPD, but now is under discussion. This will make for an interesting discussion with my Onco.
I too am at Mayo (2 years since diagnosis), and do PET scan and see RadOnc second week Jan. Ablation was mentioned last time...it is mentioned in article. May be a better choice for me. I too will have an interesting discussion! I will be interested in what they tell you.
Are you multifocal lung cancer? You mentioned radiation in both lungs...therefore multiple nodules. But were they considered metastasis or independent tumors?
Here is some more prep for you! I always like to define things:
What are interstitial diseases of the lungs?
Interstitial lung disease (ILD) is an umbrella term used for a large group of diseases that cause scarring (fibrosis) of the lungs. The scarring causes stiffness in the lungs which makes it difficult to breathe and get oxygen to the bloodstream. Lung damage from ILDs is often irreversible and gets worse over time
hat is the difference between ILD and PF?
There are more than 200 types of interstitial lung diseases (ILD), which are characterized by varied amounts of inflammation, scarring, or both, that damage the ability of the lung to absorb oxygen from the air. Pulmonary fibrosis (PF) means scarring of the lung and can be seen in many types of ILD.
What is another name for interstitial lung disease?
Interstitial lung disease (diffused parenchymal diseases) are a heterogeneous group of disorders characterized by fibrosis (scarring) of the lungs. These are classified on the basis of histopathological, radiologic and clinical parameters.Jul 31, 2023
What is the most common cause of interstitial lung disease?
Interstitial lung disease can be caused by long-term exposure to hazardous materials, such as asbestos. Some types of autoimmune diseases, such as rheumatoid arthritis, also can cause interstitial lung disease. In some cases, however, the causes remain unknown. Once lung scarring occurs, it's generally irreversible.Apr 25, 2023
hat are the 4 types of ILD?
The ILD is differentiated into four categories: lung-only (or native parenchymal) disorders, systemic disease-related disorders, exposure-related disorders, and vascular disorders (Table 2).Mar 21, 2022
Medicines
1. Bronchodilators can relax the muscles around your airways. This helps open your airways and makes breathing easier. ...
2. Corticosteroids can help treat inflammation in your lungs. You may take these with an inhaler or as a pill. ...
3. Antifibrotics (nintedanib and pirfenidone) can help slow down lung damage.
Mar 24, 2022
What are the 3 C's of interstitial lung disease?
Interstitial lung diseases classically produce the "3Cs": cough, clubbing of the nails, and coarse crackles on auscultation 6.Oct 25, 2023