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Large granular lymphocytic leukemia (LGL) questions

Blood Cancers & Disorders | Last Active: Jul 2 9:51pm | Replies (21)
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@jumper123

I found out it was T-cells, and I am wondering if I should go to the mayo clinic for a second opinion to see if they would use the same strategy. The U of M, Masonic cancer center has no specialist in LGL so I am just seeing an oncologist that feels he can handle the problem. In 2013, I had a thymoma tumor removed and the spot in my chest may of been sensitive to vapor and caused the LGL so that is a possibility. I am sure it was caused by the vapor of the product somehow. Wish you the best. Don

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Replies to "I found out it was T-cells, and I am wondering if I should go to the..."
Lori, Volunteer Mentor | @loribmt | Dec 27, 2023

Don, it never hurts to get a second opinion. I wouldn’t be alive without the amazing doctors at Mayo, so of course, I’m a little biased. ☺️

If you’d like to request an appointment at Mayo Clinic, here is a link to get you started. http://mayocl.in/1mtmR63

This takes you to their home page where you can follow the prompts for a new patient. You can select the campus most convenient for you and place the call. The coordinator who answers will be able to give you all the information you need.

If for nothing else a second opinion with a specialist will give you peace of mind…what do you think?

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marlow2 | @marlow2 | Feb 6 11:25pm

I was hospitalized with COVID Pneumonia in December of 2021. I developed a Thymona shortly afterwards. In March of 2022, I was also diagnosed with t Cell LGL. Was on Methotrexate for 14 months and it did not improve my blood count. I tried Cyclosporine for about 6 weeks and couldn't deal with the side effects. I am on no chemo dru at this time. My Neutrophils are only .2 I think that COVID caused my Thymoma and T Cell LGL.

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